Published on February 16, 2018 by Dan Neuffer
Last updated on August 26, 2019 by Dan Neuffer

16 comments

10 years of 'success' and failure with pacing transformed:

Stuart Aken heals from ME/CFS in 2 months and has stayed well!

For Recovery Story Disclaimer, please see the main page here!

picture of Stuart with ME/CFS recovery details

Most of us have tried pacing in some form or another when we experience ME/CFS, Fibromyalgia or POTS.  Either we are told about this idea, or we simply discover it ourselves when too much activity leads to crashes or flare-ups.

Stuart tells how one organisation helped him learn about pacing for ME/CFS and how it was the main strategy that helped him.  In fact, it worked so well for him that he started to think he was recovered. However, as soon as he exerted himself like a normal person, he got sick again.

Dejected but not discouraged he tried again, and the same thing happened again – in total 3 times in 10 years.  Then his work days changed and with that, so did his health and he recovered dramatically in “6-8 weeks”.  

Listen to the distinctions in his recovery efforts, the distinctions in how he engaged in the pacing strategy and what life has been like since he has recovered. in this wonderful interview.

​To learn more about Stuart Aken ​you can visit his website here: https://stuartaken.net/

​He has written up his thoughts about the illness and his experience of recovery after 10 years of illness with ME/CFS in his book M.E and me: Chronic Fatigue: My Recovery After 10 Years

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Stuart Aken

Hi, Dan. Thanks for this opportunity to tell my story and to spread some hope for those who continue to suffer with this dreadful condition. I really appreciate your care and the professional manner in which you’ve produced this piece. Let’s hope some of my optimism will rub off on others and help them manage their condition and, who knows, maybe even recover.

Juiie

What a fantastic description of the many random seeming symptoms and effects of M.E., particularly the anxiety issue, which resonates with me. M.E. is a DEPRESSING illness, not a DEPRESSIVE illness and of course, when you are in it, you don’t know if you are ever going to get better. I have been working with a practitioner of functional medicine for a couple of years and am working on diet, gut issues (a paleo diet) and stress management(mindfulness meditation), heavy metal detox (via a FIR sauna) and dampening down the fight/flight mechanism. This is a great interview and Dan asks… Read more »

Karin Boyle

Wonderful and inspiring! Acceptance is key while at the same time never give up that recovery is possible. After personally living with ME/CFS for these past 18 yrs, through relapses, periods of full or part recovery, numerous come and go symtpoms, all the ups and downs of life, trying numerous ‘treatments’…..in the end the things that work for me is acceptance, letting negative thoughts wander in my brain but not focus on them so they wander out again, pacing, healthy diet and a few supplements to help manage symptoms if I need to. Of course, sometimes I wonder if I… Read more »

Heather Stewart

Thanks Dan and Stuart, always good to hear recovery stories, my take away is the importance of trying to reduce stress, be positive, accept your life has to change and use pacing to rebuild appropriately

Christine W

Thank you Dan and Stuart for a very helpful and enlightening interview. So pleased the pacing worked. Still trying to “master” the art myself.(As a housewife there’s always something to do!) But I have found the use of a stop watch and some self discipline helpful in this respect. It does make a difference too when there is support from someone close. I think love is the operative word here. Stuart’s cheerful countenance comes across and that is really good when you need encouragement. Feeling better myself of late but I can remember and identify with his downside. This positive… Read more »

Maximilien

Hi,

Thanks to both of you for this inspiring interview.
I’m part of the program ANS rewire and a question keep coming to me after watching this. Daniel, I would be glad to read your thoughts. Why would Stuart relapse when he felt recovered? For me it’s because maybe he has a stressful work environment that he learn to manage. Another reason is maybe he went too hard too soon when he felt better.

Best. Max.

Maximilien

Thanks a lot Daniel. It makes sense to me now 🙂 Max.

Marius

Thanks for this Interview. I have a similar experience, als had 2-3 times where I recovered or was at 80-90% but I’m also not that bright… 🙂 Directly started with training, gym etc Sadly at that time, I didn’t knew that I have cfs, doctors just calling it depression and pushed me to do sport etc Than things get very worth and now I’m sick as never before. Bur I now know what is all about and starting now my lasting recovery, hopefully I’m sometime be able to share my story too. 🙂 But that is not for what I… Read more »

Louise

Thank you to both of you for this interview. I’m trying to navigate my way through this confusing illness and your words have made me feel a little better informed and significantly less alone.

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