Rediscover Hope by listening to how others recovered from ME/CFS/Fibromyalgia:
During my illness, one of the most deflating things was not hearing other people recover from Chronic Fatigue Syndrome or recover from Fibromyalgia or POTS. Hence one of the things I really wanted to do was collect and share Fibromyalgia Recovery Stories, CFS Recovery Stories, POTS Recovery Stories, Chronic Lyme Recovery Stories and Multiple Chemical Sensitivities Recovery Stories to give hope to people still suffering with this illness.
If you know someone who has recovered, please ask them to contact me to share their story or if you yourself have recovered from this group of illnesses, please contact me directly here.
RECOVERY STORIES DISCLAIMER:
Please note that the people sharing their stories here have gone through their own journey of recovery from Fibromyalgia/Chronic Fatigue Syndrome/Myalgic Encephalomyelitis/Postural Orthostatic Tachycardia Syndrome independently from the author of this website and related content. They are simply sharing their experience here and are not responsible for, nor are they endorsing the content on this website or other related products. Similarly, we do not take responsibility for the content on their respective sites or products and make no implied endorsement.
If you liked these recovery interviews, here is a great book with more recovery stories:
Recovery from CFS: 50 Personal Stories
by Alexandra Barton
I have read your books and the recovery stories and would be interested to know if any of your case histories are in their 60’s and have other illnesses to contend with. I have a diagnosed under active thyroid and take thyroxine I also have MGUS. My CFS was diagnosed by process of elimination by my GP but no support offered. I have had a year of CBT and my symptoms just got worse. Acupuncture does help as does seeing a homeopath but the improvements are short lived and the crashes more often and intense. I get stressed by the… Read more »
Hi Andrea – thanks for your comment – I totally understand your frustration and know what you mean about the ‘pet theories’. Hopefully CFS Unravelled will help you put all of these into context and help you recognise that they still have value in terms of helping you recover. If you have a look at the recoveries, you will regularly see that it is usually a combination of a mind/body approach that focusses on the root mechansim along with a range of physical treatments to help the body & secondary dysfunctions heal. And YES – I have met people of… Read more »
I was inspired by Beth’s story because of the emotional and spiritual aspects of her recovery. Although the primary expression of my emotional and spiritual illness was mental illness, the story of our recoveries is remarkably similar. I could really relate to the push and crash that she described. In fact, my diagnosis of Bipolar Disorder is indicative of that! I was also diagnosed with fibromyalgia, which I see as primarily triggered by all the stress and toxic medications prescribed to me. I even became addicted to opiates, from which I recovered when I saw it was not a treatment,… Read more »
I left two comments because I had not filled in the personal information required. I do not know which, if either you received.
Hi Lynn – got your message – thanks for your comment! 🙂
Hey Dan, Thank you very much for sharing your story! As a physician suffering from the same illness, over the last three and a half years I came to the exact same conclusion as you did – a dysfunction of the autonomic nervous system! Only that can cause that level of incapacitating fatigue, and also affect so many body systems. You had said “and my fibromyalgia pain became more prominent during the second half of my six-and-a-half-year illness.” So during this second half, when your fibromyalgia became more prominent, how was the severity of your fatigue? Did it get better,… Read more »
Hey – thanks for your comment.
I would like to be able to say the fatigue reduced – would have been a bit fairer. But unfortunately my fatigue continued to worsen on all levels, including between flare ups when the fatigue “was not so bad”. In fact, it was only after I recovered, that I got a true sense of how bad the fatigue was even at my most “energetic”. The list of other symptoms also had expanded over time.
So How does ANS rewire takes place? what I need to do to fix the ANS issue. Should reading your book will have answers or I need to buy something from this website. I read here a lot about supplements and I myself is taking supplements. My main symptom is pain but fatigue is also there. fatigues has been little better with supplements.
It isn’t as simple as some single magic strategy – it is a process of transformation.
I explain this in more detail in the free ANS REWIRE lessons.
If you listen to the interviews, you will see how the changes occur over time with a variety of strategies. 🙂
Thank you so much for taking the time to collect and share these collection of stories Dan. I’m 7 months into my 3rd episode of glandular fever, so I think it now qualifies as chronic fatigue. Neither of my last 2 episodes were this long or complicated. This time it’s got progressively worse since I first noticed it in March this year, and now I’m mostly bedbound and pretty foggy in the brain. but so far I still have good sleep, digestive health and low pain. To tell the truth, while the recovery stories are very inspiring, it is also… Read more »
Hi Jen, Thanks for your comment. Well, things sure get complicated and we should never speak in absolutes. I guess the real thing to learn is whether you actually have CFS, or whether there are other factors at play that are more easily resolved. I have also come across many people that recovered after being sick 6-18 months, so there is not reason to expect to be sick longer. It is just that those earlier recoveries from ME/CFS/Fibromyalgia are often seen as the person not actually having had the illness, although in many cases they clearly have. The word stress… Read more »
Thank you Dan : )
Ive been ill for 30+ years & have tried everything to only end up on opioids that dont even work yet have horrific side effects. Im so sick of being so ill on many levels. Was diagnosed with FM in the year 2000 & take anti deps, anti infalms & opioids as well as many many supplements that I dont even know if theyre working as Im still so sick, tired, exhausted & suffer pain 8/10 everyday. Morning stiffness, RLS, depression, arthritis, bone on bone, laberal hip tear, have had lumbar disectomy & fusion in L5 S1, Im badly constipated,… Read more »
Hi Cath – the key is going beyond symptom treatment and addressing the perpetuating mechanism of the illness. I suggest you start by watching the video explanation here: https://cfsunravelled.com/freebies/
Hi Dan, I am Kotryna. I am just 2-3 months into the illness and throughout last month when I’ve been on sick leave, thankfully I managed to do all possible tests to realise it is PVFS or CFS (I do think it’s the same, even if they don’t call it CFS yet as it’s couple of months) and glad I did it before I am bedboud 100%, while I can still invite friend for some time, and get out for little walk, see therapists from time to time, even if some weeks I feel crap, other days can be better.… Read more »
Glad you have been thoroughly checked out by your MD to rule out other illness.
As people progress with the illness, they often get added complications. So early intervention can avoid these complications which can make recovery more straightforward.
I would imagine that that Book Depository would ship to Singapore!
Thanks Dan! I did a lot of research myself on CFS and made strict routine for my mind and body, and now I will kick off with ANS rewire, more tools and knowledge cannot hurt! Even after 4 days of pure rest and good routine I can feel some differences, so feeling positive! Would be great to hear some stories how people catch it and recover easier than multiple years! As I hope people start considering PVFS/CFS in early days of the sickness, not years in it when it significantly affects their bodies and lives! Sadly at the moment it… Read more »
Yes, I hope some change will happen soon.
I can say that people in the UK get diagnosed quite quickly – much much more quickly than in the US and Australia for instance!
I actually have another question. Have spoken to a few bright doctors today and been discussing antidepressants as one way to support the recovery as it supports function of neurotransmitters. What do you think – could it potentially fasten or slow down the recovery?
It depends on the individual – people have varying results.
Hi Dan. Love the recovery stories. I watch one first thing every morning to make sure I start the day on a positive footing. I wonder whether you can tell me where I can get the piano music that you use at the beginning and end of each video? The music is very moving and every time I hear it I am reminded of your inspiring videos. It would be great, for example, to use it as my daily alarm on my phone, so the first thing I hear each day is a positive reminder that recovery is possible. Thanks,… Read more »
Glad you are enjoying the interviews.
You can purchase the soundtrack here: https://audiojungle.net/item/inspiring-cinematic/19677143
Hi Dan, Can I ask, from your experience of working with people with CFS, does the Lightning Process benefit most people? I did the course 3 years ago and couldn’t make it work for me . . . and in many ways it did more bad than good in that I have felt like a failure ever since – especially as my friend also did the course and had a wonderful result. The feeling of major failure when I put so much hope into the training – has led me into quite a cycle of depression. I suppose it would… Read more »
Hi Kate Like with many approaches, you get mixed experiences. So whilst I have met many people that recovered, many also seem to relapse soon after, but most upsetting is when people feel similar as you do. This illness is complicated and there are numerous triggers. It’s really important to be kind and gentle with yourself and explore a range of strategies (hence ANS REWIRE advocating a multi-lateral approach, even for the brain-training component). Personal responsibility is important for recovery – it really does take quite a commitment. However, this should not go as far as self-blame, ESPECIALLY if you… Read more »
After beeing diagnosed with CFS/ME, MCS and Fibromyalgia the doctors gave me no hope on recovery. My life was full of agony, pain and obsticles. I was convinced that there must be a way out of it because living with it was not worth living. The ANS rewire program helped me get my life back. Now I can enjoy life to the fullest again. This program is very educational and therefore helping to regain health an also maintain healthy on the long term. Thank you so much for this great program and all the effort you put into helping people… Read more »
Thank you for sharing your experience Juli!
Great to see you enjoying life again. 🙂
Hey, I’ve been suffering from post-viral fatigue (not sure if it’s cfs or ME). I’ve only had it since October really, and it’s gotten worse over Christmas, forcing me to defer my final medical school semester (such poor timing). I have profound exhaustion, myalgia but my severe brain fog has improved greatly. Have you seen people with post-viral fatigue recover without developing CFS/ME? I know they’re practically the same but does PVF ever spontaneously remit? I got your book anyway to address it proactively. Seeing as people recover after years of illness, surely I can only having it a few… Read more »
Your doctor will undoubtedly tell you that post-viral fatigue (PVF) is something that will pass in a few months – that is what many people experience.
On the other hand, post viral fatigue syndrome (PVFS) is ME/CFS in my view. So PVF will sometimes develop into PVFS (ie. ME/CFS)