Katina Makris’ Chronic Lyme Disease & Fibromyalgia Syndrome Recovery

Katina Makris’ Chronic Lyme Disease & Fibromyalgia Syndrome Recovery

For Recovery Story Disclaimer, please see the main page here!

Katina Makris’ Chronic Lyme Disease & Fibromyalgia Recovery Story – 5 years getting worse and worse & 5 more years to make a full recovery

Katina Makris wanted to help others learn from her experience so that they could recover faster using what she learned from her own Chronic Lyme and Fibromyalgia Syndrome recovery.  In this interview she talks about how the illness led to her life falling apart and how she hit rock bottom only to turn it all around.

Katina’s story is a testiment to the human spirit and the power of having a positive mentor.  Listen carefully to the realisations Katina made about how to recover from Chronic Lyme Disease and Fibromyalgia Syndrome.

Katina Makris has published her book Out Of The Woods and has a website to help other people with Chronic Lyme Disease and Fibromyalgia here:  http://www.katinamakris.com/

KATINA MAKRIS Interview Feature Image

 

Share the Hope!

21
What do you think? Leave a comment

avatar
8 Comment threads
13 Thread replies
1 Followers
 
Most reacted comment
Hottest comment thread
10 Comment authors
DanMeredithDansoniaTara Recent comment authors
  Subscribe  
newest oldest most voted
Notify of
Lesley
Guest
Lesley

Thank you so much for this interview! I truly needed this information and inspiration at this time. I too, was diagnosed with Chronic Fatigue / Fibro from a large research hospital in the U.S about a year and a half ago. Their only advice was to exercise. And, since I couldnt even walk to the bathroom at that time, I decided not to follow that advice. I have been bitten by many ticks, so I wanted to explore that route, too. I made an appointment with a Lyme Literate physician and sure enough my Western blot was CDC positive. I… Read more »

Dan
Guest

Hi Lesley – thank you for your wonderful comment.
It sounds like you are doing much that is right and progressing you in the right direction.
However, it strikes me that you may still be missing a large part of the puzzle!
The repeated message I am trying to put across to people is to treat the CAUSE not just the consequences or symptoms (or SECONDARY dysfunctions).
Your recovery approach still seems to be foccused on these instead of the root cause, the ANS dysfunction.
Retraining your nervous system should still be the no 1 priority in my view.
Thank you for your comment!

Meredith
Guest
Meredith

Are you saying Lyme is a secondary symptom of ans dysfunction? And would go away with ans in balance.? I had chronic Lyme so interested in your perspective on this. No doubt Lyme damages the nervous system but I also thank in in my case I do not have persistent infection as most prob do i believe my symptoms while the same are lingering bc of ans issues. But most prob due have persistent infection so how can they get ans in balance with continued infection causing damage?

Lesley
Guest
Lesley

Yes, after reading your book when I first got sick, I started the Gupta amygdala retraining program. I think it helped calm my nervous system a bit, but I was still pretty sick after 9 months of doing it. I maybe improved from 25 percent of my normal self to 35 percent. I have been a bit more lax with the training lately and will probably rewatch the training again. One question I have is your not supposed to scan your body, but I need to see if my meds and supplements are working in order to tweak. How do… Read more »

Dan
Guest

Well, you might allocate 5 minutes for that a day. Perhaps check with Ashok what he suggests!

Jay
Guest
Jay

Dear Lesley, I have a little perspective that I think is relevant to your situation. 🙂 I was also diagnosed with Lyme disease by a “Lyme literate” doctor. That ended up being a terrible distraction as multiple courses of antibiotics, each stronger than the last, left my digestive system a complete mess and I ended up getting much worse than before treatment. I am healing using the Gupta program as well, and I can safely say that for me personally, treating a supposed Lyme infection added absolutely nothing to my recovery. Ashok’s 6 month commitment is about getting people to… Read more »

Joanne
Guest
Joanne

Hi Dan thank you so much for your continued perseverance, I wanted you to know that your interviews have made a very real difference in my life and I and very grateful. I found your book and website about two years ago when I was extremely unwell. Using the hope and information that you share I am now 70% better. I haven’t been able to afford help, but between yourself and Dr, Mayhill I have accumulated the knowledge to get my self mostly back up. Keep saying it as loudly and as clearly as you have been it is possible… Read more »

Dan
Guest

Hi Joanne – thanks for your heartfelt comments – that’s very moving as this is exactly the reason why I have done all I have. Keep going and make sure you keep going with a healing environment where you are kind to yourself and avoid any fear or stress cycles – treat yourself as you would a traumatised puppy and continue to broaden your engagement with life and the world around you whilst staying relaxed and happy! I wish you all the best. Dan xx

Jay
Guest
Jay

Another great story, thanks to Dan and Katina both. It is hard to overstate how helpful each of these stories is, even though I already have a solid understanding of how to get better. There is a difference between knowing the path and walking the path. I feel like each recovery story I read or listen to eventually helps me make a new breakthrough. Thanks so much for this!

Dan
Guest

Thanks for your comment Jay 🙂

Conny
Guest

I have not listened to the whole interview yet but wanted to comment on the first question. I have tried support groups when I was so sick I couldn’t walk, and had 0 support at home. I really needed that support and hoped others with these illnesses could help. But I found out very quickly that if I was honest or speaking negatively about my feelings I was ignored or in one case actually told that I should be only posting the positive stuff. No venting allowed. It seemed that if I didn’t post kittens or flower photos with positive… Read more »

Dan
Guest

Hi Conny – yeah, I so understand where you are coming from. It sure helps to get things off our chest, and frankly, I am not sure that friends and family or even support groups are the best avenue here. A professional counsellor, free helpline or some sort of community funded counselling is really best here in my experience. The problem with most support groups is exaclty what you mentioned. But in any case, if you go there for support and others are offloading negativity, it doesn’t support you. You need well people supporting sick people, not sick people dragging… Read more »

Conny
Guest
Conny

Yes Dan, but when I do not have bad days, I feel helping others is a good thing. I do not think that someone venting is dragging me down. It makes me feel useful. I guess that’s just me. But it seems as though others would want to feel useful too, yet that doesn’t seem to be the case. Support means support doesn’t it? The reason I went to the groups online, probably common also, which is not having money for a professional councilor. I just wondered what it was. I am doing better now so I brought that up… Read more »

Dan
Guest

Hi Conny, yes, many feel they want to support others, and be supported themselves also. The need to vent is great, and an important part to address, because the held in emotion is not helpful for us! All I am saying is that, people who are unwell, especially with ME/CFS/FMS, are not well equipped to really handle these issues. And whilst you may not realise the impact of hearing others pain and suffering with the illness, I believe it to be very real and substantial. I believe that people who want to recover from the illness, should be totally selfish… Read more »

India
Guest
India

Dan, I wanted to thank you for this site (I’ve listened to every recovery story on here) and for sharing Katina’s inspiring (and hard-earned!) recovery, I also believe that there’s often a spiritual element necessary for all kinds of healing, that it’s not always enough just to address the physical. I had some CFS/ME symptoms creeping up on me in my teens but it wasn’t until I was nineteen and I got a flu-bug in my first week at University that it became severe and full blown. Since then all I’ve done is look for ways to recover from this… Read more »

Dan
Guest

Thanks for your positive comment India. Look, I think anyone who has gone through this experience with CFS/ME knows exactly what you mean. Your comments about the spiritual side are very true, I have seen this as a central theme in many recovery stories (some of which didn’t get published). I know I myself might have taken offence at this idea when I was sick as it sounds a bit like the old ‘it’s all in your head’, but of course now that I understand the pathphysiology and the psychological aspects, it all makes perfect sense. Inevitably, we transform ourselves… Read more »

Tara
Guest
Tara

I enjoyed the interview however I actually felt overwhelmed by the idea that recovery required a swag of specific tests and such fine balance metabolic tuning. I really feel we can get caught in a western framework of tweaking this and controlling that. I really prefer a much more wholistic vision of healing and I believe that miracles can happen even if this neurotransmitter is out of balance etc etc. I really don’t know if I have the finances or can find the person for such a level of tweaking. I also find Dan that you labour the point on… Read more »

Dan
Guest

Hi Tara, Thanks for your email. I am not sure what point about pre-existing condition you refer to? (apologies, it’s been a while) I don’t think that all these tests are required either, but of course, some people may find that helpful. CHRONIC Lyme fits in perfectly with my views and I don’t see the spanner you mention. But unfortunately, it of course can make recovery a little more difficult for people because with a dysfunctioning immune system, such stubborn infections are not helpful. I think a key point is my reference in the book of “lifting all the anchors… Read more »

sonia
Guest
sonia

You saved my life with the tape. I finished 10 months of IV antibiotics and Orals four months ago for Lyme. Before treatment I was sick and undiagnosed for almost 4 years. After treatment I still have most of my symptoms…fatigue is better. I’m now going the path of conventional medicine and was just put on neurontin. Conventional doctors all say get Lyme out of your head at this point. Do you agree?

Dan
Guest
Dan

Hi Sonia – of course, only your Dr can give you medial advice. My view is that the issues is more complicated than simply an infection. You might like to read this post: http://cfsunravelled.com/is-it-lyme-disease-or-fibromyalgia-me-cfs/ . In other words, the head reference may be more relevant than you realise, given that my view is that the autonomic nervous system is involved with Lyme!