September 5, 2022 - CFS Unravelled

Quick Navigation Show NotesTimestampsShannon's Video JournalsLinksTranscriptSubscribe and listen to the podcast on your favourite appOther ResourcesCheck out some other recent episodesCheck out some other recovery stories:Comments about this episode Show NotesIt's one thing seeing interviews with people that recovered, and another thing seeing them tell their stories in real-time. In this interview, Shannon tells how she recovered from fibromyalgia, ME/CFS and POTS after 7 years of illness. Her 2½ year journey was bumpy, with her actually worsening before she got better. This interview captures her journey, and when you check out the show notes you will see a collection of her video journals below that captured her story which makes for a fascinating watch. Timestamps Introduction - What If recovery isn't going well 0:00:00Podcast Disclaimer0:01:51Meeting Shannon0:02:33Shannon's experience with getting diagnosed and prognosis for Fibromyalgia0:03:37Medical emergency that led to onset of fibromyalgia0:05:57We explore the year leading to the onset of the illness0:09:03Shannon talks about her experience with depression pre illness0:10:52Shannon discusses her early emotional experience with Fibromyalgia0:13:15Shannon talks about being bedbound and the idea of 'pushing' through to recovery0:16:09Shannon tells of positive strategies that helped but didn't lead to recovery0:17:25Shannon's symptoms and experience of Fibromyalgia & when she thought she may not survive0:19:02How Shannon's family and friends reacted to her illness0:22:58Illness frustration and onset of POTS and illness worsening & connection to PTSD0:24:03How ANS REWIRE supported her when he condition suddenly worsened 0:29:41Dan talks about dark times in Fibromyalgia, CFS and POTS0:31:37Shannon talks about how she used brain-training strategies for anxiety0:32:59Shannon talks about how her CFS Fibro POTS recovery evolved with ANS REWIRE0:35:27We talk about belief in whether we can recover and the video diary that Shannon shares0:37:37Dan and Shannon talk about the lessons of ANS REWIRE on how Shannon applied them0:40:17Shannon talks about what allowed her to persist to recover0:45:05We discuss the experience of brain fog and how Shannon re-engaged mentally as she recovered0:47:14What Shannon thinks is the most important thing for CFS/POTS/Fibromyalgia Recovery0:50:11Dan talks about the importance of tailoring our approach for recovery0:50:55Shannon's life after recovering from Fibromyalgia CFS & POTS0:52:17Shannon's Video Journals Quick Navigation Video 1: Jan 2018 - Hopeful Video 2: Feb 2018 - "Believe It" Video 3: Apr 2018 - "Terrified" but "Positive"?Video 4: Nov 2018 - "Grateful" & "Hopeful"Video 5: Jan 2019 - "Recovering Quicker"Video 5b: Feb 2019 - History of Journey So Far (longer video)Video 6: March 2019 - "Excited" & "Changing"Video 7: July 2019 - "Life is filled with other things" & "Unheard of"Video 8: May 2020 - "95-98% healed" & "breakthrough to next level" Video 9: Aug 22 Update - "100% recovered" & "like a normal person" Video 1: Jan 2018 - Hopeful Video 2: Feb 2018 - "Believe It" Video 3: Apr 2018 - "Terrified" but "Positive"? Video 4: Nov 2018 - "Grateful" & "Hopeful" Video 5: Jan 2019 - "Recovering Quicker" Video 5b: Feb 2019 - History of Journey So Far (longer video) Video 6: March 2019 - "Excited" & "Changing" Video 7: July 2019 - "Life is filled with other things" & "Unheard of" Video 8: May 2020 - "95-98% healed" & "breakthrough to next level" Video 9: Aug 22 Update - "100% recovered" & "like a normal person" LinksHere is a link to the ANS REWIRE program. TranscriptFor a full transcript, check out the listing in the recovery stories section here.Subscribe and listen to the podcast on your favourite appOther ResourcesCFS Unravelled is the book that started it all, outlining the explanation for the pathogenesis of ME/CFS, Fibromyalgia, POTS, MCS and related syndromes and explaining how recovery is possible.Learn more HERE.All my email subscribers receive additional FREE resources like my book Discover Hope. So consider subscribing and reading the book to rediscover hope.To learn how other people recover, listen to the recovery interviews!If you would like to learn more about the ANS REWIRE program, check out the 4 free intro lessons or visit the ANS REWIRE website.Check out some other recent episodes@media (min-width: 300px){[data-css="tve-u-63156c1aac5595"].tcb-post-list #post-13671 [data-css="tve-u-63156c1aac55a5"]{background-image: url("https://cfsunravelled.com/wp-content/uploads/2024/07/Podcast-episode-20-o-300x300.jpg") !important;}[data-css="tve-u-63156c1aac5595"].tcb-post-list #post-13671 [data-css="tve-u-63156c1aac55b8"]:hover [data-css="tve-u-63156c1aac55a5"]{background-image: linear-gradient(rgba(255, 255, 255, 0.08), rgba(255, 255, 255, 0.08)), url("https://cfsunravelled.com/wp-content/uploads/2024/07/Podcast-episode-20-o.jpg") !important;}} Episode 20: Snippet – How resilient can recoveries be after ME/CFS, Fibromyalgia, POTS, MCS, PVFS (or long-covid)?Episode 20: Snippet – How resilient can recoveries be after ME/CFS, Fibromyalgia, POTS, MCS, PVFS (or long-covid)?@media (min-width: 300px){[data-css="tve-u-63156c1aac5595"].tcb-post-list #post-12842 [data-css="tve-u-63156c1aac55a5"]{background-image: url("https://cfsunravelled.com/wp-content/uploads/2022/10/Wisdom-Episode-4-300x300.jpg") !important;}[data-css="tve-u-63156c1aac5595"].tcb-post-list #post-12842 [data-css="tve-u-63156c1aac55b8"]:hover [data-css="tve-u-63156c1aac55a5"]{background-image: linear-gradient(rgba(255, 255, 255, 0.08), rgba(255, 255, 255, 0.08)), url("https://cfsunravelled.com/wp-content/uploads/2022/10/Wisdom-Episode-4.jpg") !important;}} Episode 4: Dr Jacob Teitelbaum, world leading MECFS Fibromyalgia POTS physician, shares his research and experienceEpisode 4: Dr Jacob Teitelbaum, world leading MECFS Fibromyalgia POTS physician, shares his research and experience@media (min-width: 300px){[data-css="tve-u-63156c1aac5595"].tcb-post-list #post-13199 [data-css="tve-u-63156c1aac55a5"]{background-image: url("https://cfsunravelled.com/wp-content/uploads/2022/10/Podcast-episode-13-1-300x300.jpg") !important;}[data-css="tve-u-63156c1aac5595"].tcb-post-list #post-13199 [data-css="tve-u-63156c1aac55b8"]:hover [data-css="tve-u-63156c1aac55a5"]{background-image: linear-gradient(rgba(255, 255, 255, 0.08), rgba(255, 255, 255, 0.08)), url("https://cfsunravelled.com/wp-content/uploads/2022/10/Podcast-episode-13-1-1024x1024.jpg") !important;}} Episode 13: Snippet – Should you change program, coach or practitioner to help you recover from CFS/Fibromyalgia/POTS/MCS?Episode 13: Snippet – Should you change program, coach or practitioner to help you recover from CFS/Fibromyalgia/POTS/MCS?@media (min-width: 300px){[data-css="tve-u-63156c1aac5595"].tcb-post-list #post-12656 [data-css="tve-u-63156c1aac55a5"]{background-image: url("https://cfsunravelled.com/wp-content/uploads/2022/10/Wisdom-Episode-1-300x300.jpg") !important;}[data-css="tve-u-63156c1aac5595"].tcb-post-list #post-12656 [data-css="tve-u-63156c1aac55b8"]:hover [data-css="tve-u-63156c1aac55a5"]{background-image: linear-gradient(rgba(255, 255, 255, 0.08), rgba(255, 255, 255, 0.08)), url("https://cfsunravelled.com/wp-content/uploads/2022/10/Wisdom-Episode-1.jpg") !important;}} Episode 1: How to cope and deal with the injustice of invisible illness including chronic illness like Fibromyalgia, ME/CFS, POTS and MCSEpisode 1: How to cope and deal with the injustice of invisible illness including chronic illness like Fibromyalgia, ME/CFS, POTS and MCS You can see the full list of episodes HERE.Check out some other recovery stories:@media (min-width: 300px){[data-css="tve-u-63156c1aac5614"].tcb-post-list #post-5635 [data-css="tve-u-63156c1aac55a5"]{background-image: url("https://cfsunravelled.com/wp-content/uploads/2017/08/CFS-Fibro-Recovery-Katina-300x164.jpg") !important;}[data-css="tve-u-63156c1aac5614"].tcb-post-list #post-5635 [data-css="tve-u-63156c1aac55b8"]:hover [data-css="tve-u-63156c1aac55a5"]{background-image: linear-gradient(rgba(255, 255, 255, 0.08), rgba(255, 255, 255, 0.08)), url("https://cfsunravelled.com/wp-content/uploads/2017/08/CFS-Fibro-Recovery-Katina-1024x559.jpg") !important;}} Is chronic lyme disease curable? – Katina Makris tells of her Chronic Lyme & Fibromyalgia Healing JourneyIs chronic lyme disease curable? – Katina Makris tells of her Chronic Lyme & Fibromyalgia Healing Journey@media (min-width: 300px){[data-css="tve-u-63156c1aac5614"].tcb-post-list #post-11723 [data-css="tve-u-63156c1aac55a5"]{background-image: url("https://cfsunravelled.com/wp-content/uploads/2020/02/MECFS-MCS-Recovery-Story-Colin-o-300x164.jpg") !important;}[data-css="tve-u-63156c1aac5614"].tcb-post-list #post-11723 [data-css="tve-u-63156c1aac55b8"]:hover [data-css="tve-u-63156c1aac55a5"]{background-image: linear-gradient(rgba(255, 255, 255, 0.08), rgba(255, 255, 255, 0.08)), url("https://cfsunravelled.com/wp-content/uploads/2020/02/MECFS-MCS-Recovery-Story-Colin-o-1024x559.jpg") !important;}} Colin’s recovery from long-term ME/CFS & MCS using the ANS REWIRE programColin’s recovery from long-term ME/CFS & MCS using the ANS REWIRE program@media (min-width: 300px){[data-css="tve-u-63156c1aac5614"].tcb-post-list #post-5769 [data-css="tve-u-63156c1aac55a5"]{background-image: url("https://cfsunravelled.com/wp-content/uploads/2017/08/MECFS-Recovery-Story-James-300x164.jpg") !important;}[data-css="tve-u-63156c1aac5614"].tcb-post-list #post-5769 [data-css="tve-u-63156c1aac55b8"]:hover [data-css="tve-u-63156c1aac55a5"]{background-image: linear-gradient(rgba(255, 255, 255, 0.08), rgba(255, 255, 255, 0.08)), url("https://cfsunravelled.com/wp-content/uploads/2017/08/MECFS-Recovery-Story-James-1024x559.jpg") !important;}} James learns how to heal from Myalgic Encephalomyelitis after 9 years of illnessJames learns how to heal from Myalgic Encephalomyelitis after 9 years of illness@media (min-width: 300px){[data-css="tve-u-63156c1aac5614"].tcb-post-list #post-8258 [data-css="tve-u-63156c1aac55a5"]{background-image: url("https://cfsunravelled.com/wp-content/uploads/2018/06/FibroCFS-Recovery-Teodora-optimised-300x164.jpg") !important;}[data-css="tve-u-63156c1aac5614"].tcb-post-list #post-8258 [data-css="tve-u-63156c1aac55b8"]:hover [data-css="tve-u-63156c1aac55a5"]{background-image: linear-gradient(rgba(255, 255, 255, 0.08), rgba(255, 255, 255, 0.08)), url("https://cfsunravelled.com/wp-content/uploads/2018/06/FibroCFS-Recovery-Teodora-optimised-1024x559.jpg") !important;}} Teodora finds her own path out of fibromyalgia MECFSTeodora finds her own path out of fibromyalgia MECFS@media (min-width: 300px){[data-css="tve-u-63156c1aac5614"].tcb-post-list #post-4421 [data-css="tve-u-63156c1aac55a5"]{background-image: url("https://cfsunravelled.com/wp-content/uploads/2017/08/ME2FCFS-Recovery-Jane-300x164.jpg") !important;}[data-css="tve-u-63156c1aac5614"].tcb-post-list #post-4421 [data-css="tve-u-63156c1aac55b8"]:hover [data-css="tve-u-63156c1aac55a5"]{background-image: linear-gradient(rgba(255, 255, 255, 0.08), rgba(255, 255, 255, 0.08)), url("https://cfsunravelled.com/wp-content/uploads/2017/08/ME2FCFS-Recovery-Jane-1024x559.jpg") !important;}} Jane learned how to overcome Depression and MECFSJane learned how to overcome Depression and MECFS@media (min-width: 300px){[data-css="tve-u-63156c1aac5614"].tcb-post-list #post-10113 [data-css="tve-u-63156c1aac55a5"]{background-image: url("https://cfsunravelled.com/wp-content/uploads/2019/04/MECFS-POTS-Lyme-Recovery-Story-Kiki-300x164.jpg") !important;}[data-css="tve-u-63156c1aac5614"].tcb-post-list #post-10113 [data-css="tve-u-63156c1aac55b8"]:hover [data-css="tve-u-63156c1aac55a5"]{background-image: linear-gradient(rgba(255, 255, 255, 0.08), rgba(255, 255, 255, 0.08)), url("https://cfsunravelled.com/wp-content/uploads/2019/04/MECFS-POTS-Lyme-Recovery-Story-Kiki-1024x559.jpg") !important;}} Kiki overcomes POTS, MECFS with Chronic Lyme after 10 years of illnessKiki overcomes POTS, MECFS with Chronic Lyme after 10 years of illness@media (min-width: 300px){[data-css="tve-u-63156c1aac5614"].tcb-post-list #post-4632 [data-css="tve-u-63156c1aac55a5"]{background-image: url("https://cfsunravelled.com/wp-content/uploads/2017/08/CFS-Recovery-Blog-Beth-French-1-300x164.jpg") !important;}[data-css="tve-u-63156c1aac5614"].tcb-post-list #post-4632 [data-css="tve-u-63156c1aac55b8"]:hover [data-css="tve-u-63156c1aac55a5"]{background-image: linear-gradient(rgba(255, 255, 255, 0.08), rgba(255, 255, 255, 0.08)), url("https://cfsunravelled.com/wp-content/uploads/2017/08/CFS-Recovery-Blog-Beth-French-1-1024x559.jpg") !important;}} Beth French’s Journey from ME-CFS to Ultra Marathon SwimmerBeth French’s Journey from ME-CFS to Ultra Marathon Swimmer@media (min-width: 300px){[data-css="tve-u-63156c1aac5614"].tcb-post-list #post-8539 [data-css="tve-u-63156c1aac55a5"]{background-image: url("https://cfsunravelled.com/wp-content/uploads/2018/12/MECFS-POTS-Recovery-Story-Mollie-1-300x164.jpg") !important;}[data-css="tve-u-63156c1aac5614"].tcb-post-list #post-8539 [data-css="tve-u-63156c1aac55b8"]:hover [data-css="tve-u-63156c1aac55a5"]{background-image: linear-gradient(rgba(255, 255, 255, 0.08), rgba(255, 255, 255, 0.08)), url("https://cfsunravelled.com/wp-content/uploads/2018/12/MECFS-POTS-Recovery-Story-Mollie-1-1024x559.jpg") !important;}} Mollie recovers rapidly after 4½ years of MECFS (POTS)Mollie recovers rapidly after 4½ years of MECFS (POTS)@media (min-width: 300px){[data-css="tve-u-63156c1aac5614"].tcb-post-list #post-10191 [data-css="tve-u-63156c1aac55a5"]{background-image: url("https://cfsunravelled.com/wp-content/uploads/2019/06/Fibromyalgia-MECFS-Lyme-MCS-Recovery-Story-Claudia-300x164.jpg") !important;}[data-css="tve-u-63156c1aac5614"].tcb-post-list #post-10191 [data-css="tve-u-63156c1aac55b8"]:hover [data-css="tve-u-63156c1aac55a5"]{background-image: linear-gradient(rgba(255, 255, 255, 0.08), rgba(255, 255, 255, 0.08)), url("https://cfsunravelled.com/wp-content/uploads/2019/06/Fibromyalgia-MECFS-Lyme-MCS-Recovery-Story-Claudia-1024x559.jpg") !important;}} 3 Decades of MECFS, Fibromyalgia, MCS and Chronic Lyme end ‘Shockingly Fast’3 Decades of MECFS, Fibromyalgia, MCS and Chronic Lyme end ‘Shockingly Fast’Comments about this episode

Episode 12: Fascinating videos capture Shannon’s recovery from 7 years of MECFS Fibromyalgia and POTS