November 10, 2023 - CFS Unravelled

Hi Guys,Being bedbound can be a scary place that leaves us feeling helpless.Often we experience sensitivities to any kind of stimulation, making it difficult to engage with any kind of education, interaction or recovery action.So the question is; how can we get past this and move forward?Perhaps hearing others' thoughts can help us crystallise what allowed us to make progress!?Here are some questions to stimulate your thoughts, I would love to hear what you think! Please comment below!1.) What can we do when we feel we can do nothing?2.) What worked for you to make enough progress to engage in other strategies?3.) How did you cope with the difficulties?4.) Did you push yourself to engage in something and get out of bed, or did you focus on withdrawing to feel better - what worked? Please note, we are looking specifically at getting out of the bedbound state, not your recovery beyond that. Please focus your comments around that!

Your thoughts; How to make recovery progress when bedbound with MECFS Fibromyalgia POTS or Long Covid