Fibromyalgia Symptoms List goes way beyond pain!

Fibromyalgia Symptoms List goes way beyond pain!

When people talk about Fibromyalgia symptoms, they usually think pain.  However, whilst more people recognise now that Fibromyalgia symptoms include other key symptoms, they are often surprised to learn that there is an extensive Fibromyalgia Symptoms list.

IMPORTANT NOTE:  


This list is not to be used for the purpose of self-diagnosis as many of these symptoms may be produced by other serious illnesses.  Hence you must seek the advice of a medical doctor to ensure that you receive appropriate medical care.

Core Fibromyalgia Symptoms List:

Fibromyalgia Pain

The fibromyalgia symptom of pain is actually much more varied than many people realise.

Fibromyalgia pain is often described as a deep muscle pain, but the pain can actually be quite different for different people.  A primary diagnostic symptom has historically been tenderness and pain upon pressing on a number of tender points located in specific locations around the body.  But pain can be all over the body similar to the ache you feel when you have a flu, or it can be more specific like a burning or stabbing pain which can throb and even be described a shooting pain.

So whilst the pain is usually widespread, it can be more localised and feel different than you might think.  Many people experience pain even upon the touching of the skin which is called Allodynia, as well as joint pain (especially the temporomandibular joint (TMJ)) and neuropathic pain which cause odd nerve sensations like tingling, pins and needles, crawling or itching sensations and even numbness(called Paraesthesia).

Fibromyalgia Fatigue

Patients experiencing Fibromyalgia often wake up tired, even if they have slept a long time. The fatigue is often severe interfering with most daily activities. It is an exhaustion that goes beyond feeling tired.

Sleep Disturbance

Fibromyalgia symptoms include a number of sleep problems. Besides waking unrefreshed, many people have difficulty getting to sleep and/or wake up in the middle of the night without being able to return to sleep. Research studies have shown that even when people don’t realise their sleep is disturbed, their sleep is disrupted from Stage 4 sleep, reducing the restorative quality of sleep. Another common co-existing sleep condition is sleep apnea.

Cognitive Impairment

One of the most noticeable fibromyalgia symptoms is cognitive dysfunction often described as ‘fibro-fog’ or ‘brain-fog’. This fibromyalgia symptom may include difficulty concentrating, confusion, memory problems, difficulty processing information, word retrieval and disorientation.

Other Fibromyalgia Symptoms:

It is often not recognised that there are many more fibromyalgia symptoms than the ‘core fibromyalgia symptoms’ listed above. Not all people diagnosed have these, but other fibromyalgia symptoms include:

  • Neurological Sensitivities such as aversion to touch, strong smells, lights, sounds and even tastes
  • Gastrointestinal disturbance including diarrhoea, constipation and other difficulties (sometimes a diagnosis of Irritable Bowel Syndrome is made)
  • Low grade fever
  • Low body temperature
  • Vision problems
  • Dry or sore eyes, sometimes described as pain behind or inside the eyes
  • Need to urinate, often along with unquenchable thirst
  • Muscle twitching described by some people as jolts or flashes
  • Chills and cold hands or feet
  • Allergies
  • Tinnitus
  • Significant change in weight
  • Decreased libido
  • Morning stiffness
  • Alcohol intolerance
  • Rashes
  • Strange smell sensations often described as ammonium
  • Profuse sweating
  • Multiple Chemical Sensitivities
  • Electromagnetic Hypersensitivity
  • Painful or swollen lymph nodes
  • Hair loss
  • Shortness of breath
  • Temperature or weather sensitivity (weather changes can lead to symptom exacerbation)
  • Canker sores and infections in the mouth
  • Vertigo

Psychological Fibromyalgia Symptoms List

People experiencing fibromyalgia often also have psychological fibromyalgia symptoms including:

  • mood swings
  • anxiety
  • depression
  • irritability
  • emotional “flattening”

Fibromyalgia symptoms from secondary diagnoses (co-existing conditions of fibromyalgia):

Given the large range of Fibromyalgia symptoms, many of these symptoms are actually attributed to ‘other’ illnesses, with patients often thinking of themselves as being ‘particularly unlucky’ to have so many different things wrong with them.  Often as symptoms change, a diagnosis of ‘separate’ syndromes of Chronic Fatigue Syndrome (ME/CFS), Postural Orthostatic Tachycardia Syndrome (POTS), Multiple Chemical Sensitivities (MCS) or similar syndrome is made. However, these conditions are more and more recognised as being part of the same syndrome and in essence the same illness with merely different symptoms.

But when you realise that Fibromyalgia affects every major system of the body, including the nervous system, endocrine system, digestive system, cardiovascular system and even your cellular functions and metabolism, then it’s easy to see how so many symptoms and ‘different illnesses’ can occur. 

Some of these are genuinely separate illnesses, however, they are often experienced by people with Fibromyalgia (FMS) and can often resolve when recovery from FMS is made. Such conditions may also exist before or after the patient has experienced FMS and include but are not limited to:

  • Severe premenstrual syndrome (PMS) or exacerbation of symptoms before and during period
  • Irritable Bowel Syndrome (IBS)
  • Endometriosis
  • Tinnitus
  • Benign Positional Vertigo (BPV)
  • Hypothyroidism
  • Adrenal Insufficiency (Adrenal Fatigue)
  • Bruxism
  • Temporomandibular disorder (TMJ)
  • Restless leg syndrome (RLS)
  • Interstitial cystitis (IC)
  • Small intestinal bacterial overgrowth (SIBO)
  • Autoimmune conditions

Fibromyalgia Symptom Severity           

It’s important to remember that different patients experience symptoms differently.

Whilst some have milder Fibromyalgia symptoms most of the time, allowing them to care for themselves, do light housework and work part or even full-time, they usually do so at the cost of reducing all other activities including social activities.

Some people experience moderate Fibromyalgia symptoms that restrict their abilities to a greater extent, with reduced mobility and usually not being able to work at all.

At its worst, Fibromyalgia symptoms can be severe and debilitating where people are mostly bed-bound (or couch-bound) and need support caring for themselves.

Many people will waver between these symptom severities over time as they experience flare-ups. However, it is important to realise that the illness is not necessarily progressive. So whilst some people experience a worsening over the years, others find their symptoms reduce as time goes on.  Reading and watching videos about patients that are severely ill can be quite distressing and should be avoided. Given the impact that stress can have, such activities can sometimes even lead to worsening of symptoms.

It is also important not to compare your Fibromyalgia symptoms to others. Just because others have more severe symptoms or have been sick for longer, doesn’t diminish your experience or make it less significant. Being chronically ill is difficult and whilst your focus is best placed on recovery and finding some enjoyment in every day regardless of how you are feeling, please realise that compared to a healthy person, your experience of FMS symptoms is of course a difficult experience for you regardless of severity.

The danger of misattribution of Fibromyalgia Symptoms

With so many symptoms and so many co-existing diagnoses, patients often experience ‘diagnosis fatigue’ where they no longer get their symptoms investigated and simply see them as just another Fibromyalgia Syndrome Symptom.

So whilst many people with Fibromyalgia Syndrome (FMS) stop panicking every time they get symptoms that look like some other major and serious disease, it is all too easy to become complacent.

It’s absolutely essential that any worsening of symptoms or new symptoms be reported to your doctor so that these can be appropriately diagnosed and treated where possible. 

Want to help?


You can help by

  • Making this article better by commenting below with any symptoms of fibromyalgia or co-morbid diagnosis of fibromyalgia that you have experienced that are not listed above.
  • Sharing this article or above YouTube video (https://youtu.be/ihEgDT084fM) on other sites where fibromyalgia is discussed, either in the comments section or in the main section by embedding links/videos directly if it is your website.

Fibromyalgia is much more than pain

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woman under blanket with headline about psychological fibromyalgia symptoms list
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woman on bed with headline about other fibromyalgia symptoms
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Kate
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Kate

How about muscle randomly occurring muscle twitching in legs, feet, tongue? Muscle tightness, weakness. Exercise intolerance, tremors. Tremors especially after mild exercise.

Tia
Guest
Tia

Muscle tightness yes. Kinks quite often where an injury may have been which is my case. Hurting to breath when areas on the body used to much. Weak enough somedays to not lift a utinsel or get supper ready or do anything fun because all energy saved for work. Pain going down your neck into your shoulder blades and up the jaw area so they swell. Not very flexible anymore. Hips sore if walking up and down the stairs to often. Stretching doesn’t take the kink away and massages feel like I have been run over by a truck. My… Read more »

Abi
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Abi

I would like to know how people maintain a quality of life that’s worth living? I seem to have a lot of these symptoms gradually and consistently worsening for the last 6 and a half years and doctors don’t help, maybe they don’t believe me or they just don’t have any ideas of what to do or who to send me to. My quality of life continues to decrease… I have not much hope for doing being or having anything in life that I wanted or that I see other 27 year olds doing being and having.. every single basic… Read more »

Sonja Newton
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Sonja Newton

“Post” Menopausal/Fibro diagnosis And the three words that changed my life … LOW DOSE NALTRAXONE!

Matteo
Guest
Matteo

great article! I’ve have fibro from 12 years and many of the symptoms you talked about.

QUESTION: is there a cure?

Pjmccreanor
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Pjmccreanor

Rccx theory, Ehrlers Danlos. MTHFR mutation, genectic based CFS, and fibro, my fibro is such that my arms and legs are painful to touch, and when I try to massage them there are miniature knots all over that when rubbed can send severe nerve pain all over

lizzie
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lizzie

Fascinating. Although 35 years ago,from the age of 23 I had the most extreme PMT causing horrendous rages, I was aggressive and abusive to my family. It caused so many problems. Drs didn’t understand, after I had my 2nd daughter I pleaded for a Hysterectomy as I saw it as the only way of ending the monthly torture. The PMT, the heavy bleeding, stomach cramps, & migraine. Fortunately I was listened to& after my surgery just before my 30th birthday. The majority of the menstrual problems disappeared. I had various other health symptoms from then on, tiredness, painful hands, bowel… Read more »

Deanna
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Deanna

Do any of my fellow FMS ppl experience severe foot pain? I limped around for a year, years ago, before seeing a podiatrist, who told me I had a benign tumor, which he surgically removed. Years later I’ve begun having the same kind of pain on the other sole. Sometimes there are stabbing pains that go from my foot soles all the way up my legs to my groin. They happen randomly and often make me scream, involuntarily. Sometimes it’s an extreme soreness when i put weight on my foot (that is, when i walk!). Sometimes it’s both simultaneously along… Read more »

karla king
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karla king

I have excruciating muscle spasms in my chest and stomach. I actually had a heart cath because of these and of course they found no problem. I also have extra heart beats. They come in 3’s and 4’s instead of 1 beat at a time. It wears on you
something awful!

Nichole
Guest
Nichole

I found the article very insightful. Having Fibromyalgia myself it’s very frustrating to me. I report a new symptom or symptoms to my pcp. I am asked to go in for a office visit,which results in there is nothing wrong just a flare up. I am asked if I am following my care plan. The answer is always yes. My pcp will order blood work. It’s the same thing over and over. I have given up calling my pcp because I feel like I am wasting everyone’s time. So as a result I try to do my best everyday even… Read more »

Claudia Sanchez
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Claudia Sanchez

Dear Necol I know how wuful it feels when you are looking for answers to your condicion and all you heard is that your blood work is normal. I spend years and years looking for answers. When finally a doctor talk to me about fibromyalgia I felt relief, finally I was sure that I wasn’t crazy after all.
But the most important thing is know that I am not alone.
Be strong and never gave up, you will have good days too.

melanie white
Guest
melanie white

I am glad I read this there have been times I thought I was going mad. I have had fibro for over 20 years with other conditions just taking a shower and geting something to eat takes all the energy ive got

Cheryl
Guest
Cheryl

How about suicidal thoughts for those of us trying to cope with constant pain ?

Mimi Ramsey
Guest
Mimi Ramsey

I have fibromyalgia really bad. I found out I had fibromyalgia when I was doing water aerobics and down for three days. I feel exercise makes my body aches more. The cold makes it worst and high humidity. Since I had it for years, I feel I am getting more and more pain as I get older.

Risë Bourland
Guest
Risë Bourland

Great article. In 1997 I was diagnosed with fibromyalgia, after about 5 years of searching for a doc to find something. I truly believe that a diagnosis is half the battle. I think, even as bad as my pain is, that the vomiting and nausea was by far my worst symptom. Fortunately it has stopped. It wasn’t just puking, it was “Exorcist”, head spinning, pea soup shooting across the floor-kind. I was hospitalized 6 times in 3 years and a cause could not be found. I’m 5’9 and for most of my life I weighed 125 lbs., but in the… Read more »

Kay
Guest
Kay

It was an article that I will copy. Some friends & family may understand my behavior better! I also have Lupus. Again some of the symptoms seem the same.

Terry L Hunt
Guest
Terry L Hunt

Along with everything mentioned, itching is common symptom for myself. Not the rash type, more just under the skin type. Often starting around late afternoon and becoming worse as night comes on. Have tried different creams nothing makes a difference. Also noticing an increase in sight difficulties.

Tess
Guest
Tess

It is so helpful just to read some of these symptoms because I wasn’t aware of a lot of them. I always wonder why my skin hurts, (literally hurts when my clothes touch it or if I try to wear shorts I can’t sit on my sofa because it hurts) my family thinks I’m nuts so being able to show them this article will be so enlightening. I also didn’t know that insomnia was a symptom. I’ve suffered with fibromyalgia for years and insomnia just as long. I guess I need to go over some things with my dr on… Read more »

Christine Svensson
Guest
Christine Svensson

Hello! My namne is Christine and I have lived with fibromyalgis since 1994 and have had to use a wheelchair fore periods of time when my pain has been to severe. I work as a souschef and started to experiment with different food on myself and found that you can take away a LOT of the pain if you eat a bit different. Cut out 80 % of the carbs and eat much more fat you will feel so much better and start with low cardio training dayily.

Beth
Guest
Beth

Thank you for sharing your insight and this inclusive list of effected systems, addressing the complexity of diagnosing, explaining how differently fibromyalgia can be experienced, and describing the impact of a chronic illness. I am one of many in my family who was finally diagnosed with fibromyalgia, after years of misdiagnoses and suffering. But, my symptoms have not readily matched other people’s. Add the exacerbation of so many inappropriate medications, and I have been unnecessarily challenged and sorely misunderstood. That makes for a deeply painful, isolating life. I will try to follow your advice and refrain from researching others’ experiences,… Read more »