3 Decades of MECFS, Fibromyalgia, MCS and Chronic Lyme end ‘Shockingly Fast’
During 3 decades of illness with ME/CFS, Fibromyalgia, MCS and Chronic Lyme, Claudia becomes intimately involved with advocacy work when she gets a strange facebook request about a book talking of ‘recovery’ – what happened next left her feeling shocked and a little confused.
Kiki overcomes POTS, MECFS with Chronic Lyme after 10 years of illness
Kiki (@chronicallyhealed) tried lots of cures for POTS but nothing really worked for years. Finally, she cured POTS and ME/CFS in stages over a period of 3 years and regained her health despite being diagnosed with Chronic Lyme Disease. In this interview, she tells her story.
Sirin Gnadeberg shares how she cured her ME/CFS & POTS
Sirin Gnadeberg shares how she cured ME/CFS & POTS after 5 years of debilitating illness in her own words below.
People with Fibromyalgia POTS MECFS need support
Sometimes our need for support is greater than our need to have ‘things fixed’.
Change your relationship to pain
Pain doesn’t have to turn you into a victim.
Surrender to it, change your relationship with it
and eventually, conquer it.
Pain does not have to turn you into a victim
Pain doesn’t have to turn you into a victim.
Surrender to it, change your relationship with it
and eventually, conquer it.
Impact of support for people experiencing MECFS POTS Fibromyalgia
When “I” is replaced by “We”
even Illness becomes Wellness!
Resilience in the face of MECFS POTS Fibromyalgia
I will not give up.
I am taking steps forward.
I am resilient.
I know things can improve.
The power of support for people experiencing MECFS POTS Fibromyalgia
When “I” is replaced by “We”
even Illness becomes Wellness!
MECFS POTS Fibromyalgia Inspiration to conquer pain
Pain doesn’t have to turn you into a victim! Surrender to it, change your relationship with it and eventually conquer it!
Inspiring others to recover from MECFS POTS Fibromyalgia
I want to inspire people, I want someone to say “Because of you I didn’t give up”
Finding inner strength with MECFS POTS Fibromyalgia
My strength did not come from others. My strength came from lifting myself up when I was knocked down.
MECFS POTS Fibromyalgia Struggle But Not Quit
You may see me struggle with ME/CFS, Fibromyalgia or POTS, but you won’t see me quit.
3 – How does recovery from ME/CFS/Fibromyalgia/POTS occur?
If you think pain is the sole symptom of fibromyalgia, you may be shocked to learn that there are in fact many more fibromyalgia symptoms. Here is a full list of fibromyalgia symptoms including the core fibromyalgia symptoms.
2 – Why does MECFS Fibromyalgia & POTS perpetuate?
If you think pain is the sole symptom of fibromyalgia, you may be shocked to learn that there are in fact many more fibromyalgia symptoms. Here is a full list of fibromyalgia symptoms including the core fibromyalgia symptoms.
1 – The Root Cause of MECFS Fibromyalgia & POTS
If you think pain is the sole symptom of fibromyalgia, you may be shocked to learn that there are in fact many more fibromyalgia symptoms. Here is a full list of fibromyalgia symptoms including the core fibromyalgia symptoms.
What is Fibromyalgia (FMS) – NOT a pain symptom!
The answer to ‘what is fibromyalgia’ surprises people. So we explain exactly what fibromyalgia is and bust some myths in the process. The name does not fit the illness and fibromyaliga is NOT solely a pain symptom!
Fibromyalgia Symptoms List goes way beyond pain!
If you think pain is the sole symptom of fibromyalgia, you may be shocked to learn that there are in fact many more fibromyalgia symptoms. Here is a full list of fibromyalgia symptoms including the core fibromyalgia symptoms.
Mollie recovers rapidly after 4½ years of MECFS (POTS)
Mollie shares her experience with the ANS REWIRE program after 4 years of failed approaches to return to health in an inspiring interview.
Advocacy Video – let’s spread the word together!
People often think that ME/CFS is just about fatigue. This video is to help educate the wider community and make them realise that the illness is much more involved than that, and to show them it’s real! We also created a longer version of the video, which is designed to help people experiencing ME/CFS realise that […]
Making Decisions and Taking Actions for Recovery from Fibromyalgia, ME/CFS and POTS
Exploring how you make decisions for your CFS/Fibro/POTS recovery may be the most important first step of your recovery to health journey.
Chronic Fatigue Syndrome Symptoms List – shockingly long!
When people ask ‘What are the symptoms of Chronic Fatigue Syndrome (ME/CFS)’, they are often surprised to learn that there is an extensive ME/CFS Symptoms list. IMPORTANT NOTE: This list is not to be used for the purpose of self-diagnosis as many of these symptoms may be produced by other serious illnesses. Hence you […]
Chronic Fatigue Syndrome cured by itself? Here is Kari’s CFS Recovery Story
Kari’s ME/CFS had a rapid shocking onset whilst playing sport, but despite her best efforts, she stayed sick for 6 years. Now a decade later she looks back and wonders – did her CFS go away by itself?
After 6 years it’s time I make a change
My recent health scare has made me reflect about what happens when one day, I will no longer be here. Accordingly, I have reflected on my advocacy efforts for ME/CFS/Fibromyalgia/POTS and come to a big decision that change is warranted after 6 years of effort.
What is Chronic Fatigue Syndrome (CFS) – the answer might surprise
If you are asking “What is Chronic Fatigue Syndrome (CFS)?”, then your very next question is probably “What is ME/CFS?” and “What is Myalgic Encephalomyelitis (ME)?”. Why the different names?All these different names for the same illness show the history of confusion and lack of definitive diagnostic tools.Whilst a distinction in definition can be made […]
Lessons from my life-saving surgery that might save your life!
FLASHBACK:It was Sunday morning at around 3.30 am. As I drifted back into consciousness, I realised I was lying on a concrete floor. I was outside, on a footpath, curled up in the fetal position. I was alone.There was a plastic sick bag in my hand and suddenly the waves of pain washed over me […]
Teodora finds her own path out of fibromyalgia MECFS
Teodora had experienced severe chronic fatigue before her Fibromyalgia started at age 31. She didn’t want to accept her doctors’ verdicts that it’s ‘incurable’, so she found her own path out of fibromyalgia.
3 Problems Chronically Ill people can avoid by STOPPING this
If you have ME/CFS, Fibromyalgia, POTS or other invisible illness, then chances are you find it frustrating trying to get other people to believe and take your choices seriously, especially family and friends. Here is my advice on how to handle this.
For years I have been giving people advice and find myself getting annoyed after all these years when I hear the suffering and frustration that people endure because their choices are not respected.
Age & length of illness are no barrier for recovery from fibromyalgia and CFS
Diane recovered remarkably fast after 3 decades of ME/CFS/Fibromyalgia and one year after her recovery shares what life is like now. She tells her story and her experience giving a review of the ANS REWIRE program.