My recent health scare has made me reflect about what happens when one day, I will no longer be here. Accordingly, I have reflected on my advocacy efforts for ME/CFS/Fibromyalgia/POTS and come to a big decision that change is warranted after 6 years of effort.
Ted shares how an email reignited hope and reduced him and his wife to tears. In this interview he tells how he recovered using the ANS REWIRE program.
If you are asking “What is Chronic Fatigue Syndrome (CFS)?”, then your very next question is probably “What is ME/CFS?” and “What is Myalgic Encephalomyelitis (ME)?”. Why the different names?All these different names for the same illness show the history of confusion and lack of definitive diagnostic tools.Whilst a distinction in definition can be made […]
FLASHBACK:It was Sunday morning at around 3.30 am. As I drifted back into consciousness, I realised I was lying on a concrete floor. I was outside, on a footpath, curled up in the fetal position. I was alone.There was a plastic sick bag in my hand and suddenly the waves of pain washed over me […]
Teodora had experienced severe chronic fatigue before her Fibromyalgia started at age 31. She didn’t want to accept her doctors’ verdicts that it’s ‘incurable’, so she found her own path out of fibromyalgia.
If you have ME/CFS, Fibromyalgia, POTS or other invisible illness, then chances are you find it frustrating trying to get other people to believe and take your choices seriously, especially family and friends. Here is my advice on how to handle this.
For years I have been giving people advice and find myself getting annoyed after all these years when I hear the suffering and frustration that people endure because their choices are not respected.
Diane recovered remarkably fast after 3 decades of ME/CFS/Fibromyalgia and one year after her recovery shares what life is like now. She tells her story and her experience giving a review of the ANS REWIRE program.
Getting newly diagnosed with ME/CFS, Fibromyalgia, POTS or similar syndrome can bring up all kinds of emotions. But the decisions we make when we are diagnosed can have both an immediate and ongoing impact on our lives, our health and our chances of recovery. In this video, I talk about my own experience and seeing others experience with this syndrome and how their decisions have impacted their lives. What are your thoughts about the questions I pose in the video? Let’s have a discussion and please share this with others experiencing ME/CFS, Fibromyalgia, POTS or related syndrome. I look forward to your thoughts.
Stuart discusses his experience with Myalgic Encephalomyelitis (M.E. ME/CFS) and how three ‘recoveries’ using pacing were just symptom reductions but failed as soon as he exerted himself normally. Then, after 10 years of illness, he recovered in as little as 2 months.