Author Archives: Dan

After 6 years it’s time I make a change

My recent health scare has made me reflect about what happens when one day, I will no longer be here. Accordingly, I have reflected on my advocacy efforts for ME/CFS/Fibromyalgia/POTS and come to a big decision that change is warranted after 6 years of effort.

What is Chronic Fatigue Syndrome (CFS) – the answer might surprise

If you are asking “What is Chronic Fatigue Syndrome (CFS)?”, then your very next question is probably “What is ME/CFS?” and “What is Myalgic Encephalomyelitis (ME)?”. Why the different names?All these different names for the same illness show the history of confusion and lack of definitive diagnostic tools.Whilst a distinction in definition can be made […]

3 Problems Chronically Ill people can avoid by STOPPING this

If you have ME/CFS, Fibromyalgia, POTS or other invisible illness, then chances are you find it frustrating trying to get other people to believe and take your choices seriously, especially family and friends. Here is my advice on how to handle this.

For years I have been giving people advice and find myself getting annoyed after all these years when I hear the suffering and frustration that people endure because their choices are not respected.

Diagnosis of ME/CFS Fibromyalgia POTS – How acceptance could impact your life

Getting newly diagnosed with ME/CFS, Fibromyalgia, POTS or similar syndrome can bring up all kinds of emotions. But the decisions we make when we are diagnosed can have both an immediate and ongoing impact on our lives, our health and our chances of recovery. In this video, I talk about my own experience and seeing others experience with this syndrome and how their decisions have impacted their lives. What are your thoughts about the questions I pose in the video? Let’s have a discussion and please share this with others experiencing ME/CFS, Fibromyalgia, POTS or related syndrome. I look forward to your thoughts.

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