April 6, 2022 - CFS Unravelled

Quick Navigation Subscribe and listen to the podcast on your favourite appShow NotesTimestampsLinksTranscriptOther ResourcesCheck out some other recent episodesCheck out some other recovery stories:Comments about this episode Subscribe and listen to the podcast on your favourite appShow NotesWhen you try all the treatments you find out about, and keep receiving different diagnoses, it can be a harrowing experience.Alexandra shares her difficult decisions in her quest to recover from mould illness and chronic fatigue syndrome and how despite a 'brain-training' program not helping her, she decided to try ANS REWIRE anyway and succeeded with her recovery.Timestamps Introduction - I am different0:00:00Interview Preview0:01:57Podcast Disclaimer0:03:15Meeting Alexandra0:03:58Illness onset with visit to emergency room0:04:53Meeting Alexandra0:03:58Alexandra talks about the pressure to take medications for mental health diagnosis0:10:05Alexandra talks about depression and anxiety about her illness and the lack of validation0:11:46Alexandra talks about the domino effect of symptoms 0:15:08The 'woodpecker' attacks her head0:15:48The terrible impact of one Doctor's words on Alexandra0:17:08Alexandra finds a new community, treatments and diagnosis of Mould Illness/Mould toxicity0:18:21The inconsistencies and frustrations around mould illness and mould illness treatments0:20:08The no win situation with getting mould treatments - the impossible task0:27:58Alexandra shares the shocking financial impact of trying to treat mould illness0:29:22Finally a new diagnosis of CFS for Alexandra and a new direction0:31:15Alexandra talks about her symptoms at their worst - bedbound0:35:04Alexandra talks about her first failure with trying brain-training0:37:15Alexandra talks about the impact of unresolving illness on her and her family0:39:24A new direction and merry-go-round with integrative medicine0:40:46Alexandra talks about her turning point in mould illness and CFS recovery0:46:10How ANS REWIRE was a different experience to other brain-training programs0:48:18Alexandra finds her tribe of fellow recoverers0:50:21Dan asks about overwhelm in dealing with a multi-lateral approach0:51:05Engagement with other health care professionals whilst doing ANS REWIRE0:55:32Dan asks about trepidations with trying 'brain-training' again for CFS & mould illness recovery0:56:57The importance of mindset and coaching for recovery0:58:08When did significant recovery shifts occur1:00:56The experience of the rest of the recovery tribe 1:06:15Alexandra's recovery journey & people's responses1:08:02How Alexandra tapered off treatments during her recovery1:11:02Dan asks about how important the physical training lessons were for her recovery and ANS normalisation1:12:06What about the fears around physical activity and mould exposure1:14:06Alexandra focusses on incremental gains for recovery from CFS and mould exposure1:16:34What Alexandra learned about engaging in life from her illness experience1:19:28The most Amazing moment since Alexandra recovered from CFS & mould illness1:24:36What advice Alexandra would give to someone seeking recovery from mould illness and CFS1:26:13LinksHere is a link to the ANS REWIRE program. Transcript For a full transcript, check out the listing in the recovery stories section here.Other ResourcesCFS Unravelled is the book that started it all, outlining the explanation for the pathogenesis of ME/CFS, Fibromyalgia, POTS, MCS and related syndromes and explaining how recovery is possible.Learn more HERE.All my email subscribers receive additional FREE resources like my book Discover Hope. So consider subscribing and reading the book to rediscover hope.To learn how other people recover, listen to the recovery interviews!If you would like to learn more about the ANS REWIRE program, check out the 4 free intro lessons or visit the ANS REWIRE website.Check out some other recent episodes@media (min-width: 300px){[data-css="tve-u-624d33b80e2e09"].tcb-post-list #post-13671 [data-css="tve-u-624d33b80e2e18"]{background-image: url("https://cfsunravelled.com/wp-content/uploads/2024/07/Podcast-episode-20-o-300x300.jpg") !important;}[data-css="tve-u-624d33b80e2e09"].tcb-post-list #post-13671 [data-css="tve-u-624d33b80e2e21"]:hover [data-css="tve-u-624d33b80e2e18"]{background-image: linear-gradient(rgba(255, 255, 255, 0.08), rgba(255, 255, 255, 0.08)), url("https://cfsunravelled.com/wp-content/uploads/2024/07/Podcast-episode-20-o.jpg") !important;}} Episode 20: Snippet – How resilient can recoveries be after ME/CFS, Fibromyalgia, POTS, MCS, PVFS (or long-covid)?Episode 20: Snippet – How resilient can recoveries be after ME/CFS, Fibromyalgia, POTS, MCS, PVFS (or long-covid)?@media (min-width: 300px){[data-css="tve-u-624d33b80e2e09"].tcb-post-list #post-12842 [data-css="tve-u-624d33b80e2e18"]{background-image: url("https://cfsunravelled.com/wp-content/uploads/2022/10/Wisdom-Episode-4-300x300.jpg") !important;}[data-css="tve-u-624d33b80e2e09"].tcb-post-list #post-12842 [data-css="tve-u-624d33b80e2e21"]:hover [data-css="tve-u-624d33b80e2e18"]{background-image: linear-gradient(rgba(255, 255, 255, 0.08), rgba(255, 255, 255, 0.08)), url("https://cfsunravelled.com/wp-content/uploads/2022/10/Wisdom-Episode-4.jpg") !important;}} Episode 4: Dr Jacob Teitelbaum, world leading MECFS Fibromyalgia POTS physician, shares his research and experienceEpisode 4: Dr Jacob Teitelbaum, world leading MECFS Fibromyalgia POTS physician, shares his research and experience@media (min-width: 300px){[data-css="tve-u-624d33b80e2e09"].tcb-post-list #post-13199 [data-css="tve-u-624d33b80e2e18"]{background-image: url("https://cfsunravelled.com/wp-content/uploads/2022/10/Podcast-episode-13-1-300x300.jpg") !important;}[data-css="tve-u-624d33b80e2e09"].tcb-post-list #post-13199 [data-css="tve-u-624d33b80e2e21"]:hover [data-css="tve-u-624d33b80e2e18"]{background-image: linear-gradient(rgba(255, 255, 255, 0.08), rgba(255, 255, 255, 0.08)), url("https://cfsunravelled.com/wp-content/uploads/2022/10/Podcast-episode-13-1-1024x1024.jpg") !important;}} Episode 13: Snippet – Should you change program, coach or practitioner to help you recover from CFS/Fibromyalgia/POTS/MCS?Episode 13: Snippet – Should you change program, coach or practitioner to help you recover from CFS/Fibromyalgia/POTS/MCS?@media (min-width: 300px){[data-css="tve-u-624d33b80e2e09"].tcb-post-list #post-12656 [data-css="tve-u-624d33b80e2e18"]{background-image: url("https://cfsunravelled.com/wp-content/uploads/2022/10/Wisdom-Episode-1-300x300.jpg") !important;}[data-css="tve-u-624d33b80e2e09"].tcb-post-list #post-12656 [data-css="tve-u-624d33b80e2e21"]:hover [data-css="tve-u-624d33b80e2e18"]{background-image: linear-gradient(rgba(255, 255, 255, 0.08), rgba(255, 255, 255, 0.08)), url("https://cfsunravelled.com/wp-content/uploads/2022/10/Wisdom-Episode-1.jpg") !important;}} Episode 1: How to cope and deal with the injustice of invisible illness including chronic illness like Fibromyalgia, ME/CFS, POTS and MCSEpisode 1: How to cope and deal with the injustice of invisible illness including chronic illness like Fibromyalgia, ME/CFS, POTS and MCS You can see the full list of episodes HERE.Check out some other recovery stories:@media (min-width: 300px){[data-css="tve-u-624d33b80e2e88"].tcb-post-list #post-12719 [data-css="tve-u-624d33b80e2e18"]{background-image: url("https://cfsunravelled.com/wp-content/uploads/2021/04/MECFS-POTS-Recovery-Story-Oda-o-300x164.jpg") !important;}[data-css="tve-u-624d33b80e2e88"].tcb-post-list #post-12719 [data-css="tve-u-624d33b80e2e21"]:hover [data-css="tve-u-624d33b80e2e18"]{background-image: linear-gradient(rgba(255, 255, 255, 0.08), rgba(255, 255, 255, 0.08)), url("https://cfsunravelled.com/wp-content/uploads/2021/04/MECFS-POTS-Recovery-Story-Oda-o-1024x559.jpg") !important;}} After 10 years of illness Oda shares her POTS recovery (& MECFS recovery) using ANS REWIRE & cold water immersionAfter 10 years of illness Oda shares her POTS recovery (& MECFS recovery) using ANS REWIRE & cold water immersion@media (min-width: 300px){[data-css="tve-u-624d33b80e2e88"].tcb-post-list #post-4973 [data-css="tve-u-624d33b80e2e18"]{background-image: url("https://cfsunravelled.com/wp-content/uploads/2017/08/CFS-Fibro-Recovery-Rachel-Hawes-300x164.jpg") !important;}[data-css="tve-u-624d33b80e2e88"].tcb-post-list #post-4973 [data-css="tve-u-624d33b80e2e21"]:hover [data-css="tve-u-624d33b80e2e18"]{background-image: linear-gradient(rgba(255, 255, 255, 0.08), rgba(255, 255, 255, 0.08)), url("https://cfsunravelled.com/wp-content/uploads/2017/08/CFS-Fibro-Recovery-Rachel-Hawes-1024x559.jpg") !important;}} Rachel’s finally experiences a robust Fibromyalgia recoveryRachel’s finally experiences a robust Fibromyalgia recovery@media (min-width: 300px){[data-css="tve-u-624d33b80e2e88"].tcb-post-list #post-8539 [data-css="tve-u-624d33b80e2e18"]{background-image: url("https://cfsunravelled.com/wp-content/uploads/2018/12/MECFS-POTS-Recovery-Story-Mollie-1-300x164.jpg") !important;}[data-css="tve-u-624d33b80e2e88"].tcb-post-list #post-8539 [data-css="tve-u-624d33b80e2e21"]:hover [data-css="tve-u-624d33b80e2e18"]{background-image: linear-gradient(rgba(255, 255, 255, 0.08), rgba(255, 255, 255, 0.08)), url("https://cfsunravelled.com/wp-content/uploads/2018/12/MECFS-POTS-Recovery-Story-Mollie-1-1024x559.jpg") !important;}} Mollie recovers rapidly after 4½ years of MECFS (POTS)Mollie recovers rapidly after 4½ years of MECFS (POTS)@media (min-width: 300px){[data-css="tve-u-624d33b80e2e88"].tcb-post-list #post-13001 [data-css="tve-u-624d33b80e2e18"]{background-image: url("https://cfsunravelled.com/wp-content/uploads/2022/04/Alexandra-CFS-Recovery-Story-o-300x164.jpg") !important;}[data-css="tve-u-624d33b80e2e88"].tcb-post-list #post-13001 [data-css="tve-u-624d33b80e2e21"]:hover [data-css="tve-u-624d33b80e2e18"]{background-image: linear-gradient(rgba(255, 255, 255, 0.08), rgba(255, 255, 255, 0.08)), url("https://cfsunravelled.com/wp-content/uploads/2022/04/Alexandra-CFS-Recovery-Story-o-1024x559.jpg") !important;}} RECOVERY STORY: Alexandra recovers from 4 years of illness with CFS and Mould IllnessRECOVERY STORY: Alexandra recovers from 4 years of illness with CFS and Mould Illness@media (min-width: 300px){[data-css="tve-u-624d33b80e2e88"].tcb-post-list #post-7954 [data-css="tve-u-624d33b80e2e18"]{background-image: url("https://cfsunravelled.com/wp-content/uploads/2018/02/MECFS-Recovery-Stuart-optimised-300x164.jpg") !important;}[data-css="tve-u-624d33b80e2e88"].tcb-post-list #post-7954 [data-css="tve-u-624d33b80e2e21"]:hover [data-css="tve-u-624d33b80e2e18"]{background-image: linear-gradient(rgba(255, 255, 255, 0.08), rgba(255, 255, 255, 0.08)), url("https://cfsunravelled.com/wp-content/uploads/2018/02/MECFS-Recovery-Stuart-optimised-1024x559.jpg") !important;}} Stuart Aken ends 10 years of ME/CFS & discusses his success with pacing and its failuresStuart Aken ends 10 years of ME/CFS & discusses his success with pacing and its failures@media (min-width: 300px){[data-css="tve-u-624d33b80e2e88"].tcb-post-list #post-13804 [data-css="tve-u-624d33b80e2e18"]{background-image: url("https://cfsunravelled.com/wp-content/uploads/2024/09/Lynne-CFS-Recovery-Story-o-300x164.jpg") !important;}[data-css="tve-u-624d33b80e2e88"].tcb-post-list #post-13804 [data-css="tve-u-624d33b80e2e21"]:hover [data-css="tve-u-624d33b80e2e18"]{background-image: linear-gradient(rgba(255, 255, 255, 0.08), rgba(255, 255, 255, 0.08)), url("https://cfsunravelled.com/wp-content/uploads/2024/09/Lynne-CFS-Recovery-Story-o-1024x559.jpg") !important;}} ME/CFS Recovery Story: How Pacing and CBT Led to Lynne’s SuccessME/CFS Recovery Story: How Pacing and CBT Led to Lynne’s Success@media (min-width: 300px){[data-css="tve-u-624d33b80e2e88"].tcb-post-list #post-12547 [data-css="tve-u-624d33b80e2e18"]{background-image: url("https://cfsunravelled.com/wp-content/uploads/2020/12/Veras-severe-MECFS-Recovery-Story-300x164.jpg") !important;}[data-css="tve-u-624d33b80e2e88"].tcb-post-list #post-12547 [data-css="tve-u-624d33b80e2e21"]:hover [data-css="tve-u-624d33b80e2e18"]{background-image: linear-gradient(rgba(255, 255, 255, 0.08), rgba(255, 255, 255, 0.08)), url("https://cfsunravelled.com/wp-content/uploads/2020/12/Veras-severe-MECFS-Recovery-Story-1024x559.jpg") !important;}} Severe Chronic Fatigue Syndrome Recovery After Six Years – Vera’s StorySevere Chronic Fatigue Syndrome Recovery After Six Years – Vera’s Story@media (min-width: 300px){[data-css="tve-u-624d33b80e2e88"].tcb-post-list #post-13299 [data-css="tve-u-624d33b80e2e18"]{background-image: url("https://cfsunravelled.com/wp-content/uploads/2023/01/Rachel-Fibromyalgia-Recovery-Card-1-300x164.jpg") !important;}[data-css="tve-u-624d33b80e2e88"].tcb-post-list #post-13299 [data-css="tve-u-624d33b80e2e21"]:hover [data-css="tve-u-624d33b80e2e18"]{background-image: linear-gradient(rgba(255, 255, 255, 0.08), rgba(255, 255, 255, 0.08)), url("https://cfsunravelled.com/wp-content/uploads/2023/01/Rachel-Fibromyalgia-Recovery-Card-1-1024x559.jpg") !important;}} Fibromyalgia Remission or Recovery – Rachel shares her return to healthFibromyalgia Remission or Recovery – Rachel shares her return to health@media (min-width: 300px){[data-css="tve-u-624d33b80e2e88"].tcb-post-list #post-4151 [data-css="tve-u-624d33b80e2e18"]{background-image: url("https://cfsunravelled.com/wp-content/uploads/2017/08/Abigail-Fibro-Recovery-Blog-300x164.jpg") !important;}[data-css="tve-u-624d33b80e2e88"].tcb-post-list #post-4151 [data-css="tve-u-624d33b80e2e21"]:hover [data-css="tve-u-624d33b80e2e18"]{background-image: linear-gradient(rgba(255, 255, 255, 0.08), rgba(255, 255, 255, 0.08)), url("https://cfsunravelled.com/wp-content/uploads/2017/08/Abigail-Fibro-Recovery-Blog-1024x559.jpg") !important;}} Abigail tells how she managed to recover from long-term Fibromyalgia MECFS after 20+ yearsAbigail tells how she managed to recover from long-term Fibromyalgia MECFS after 20+ yearsComments about this episode

Episode 10: Alexandra shares her success with ANS REWIRE for mould illness and CFS recovery

RECOVERY STORY: Alexandra recovers from 4 years of illness with CFS and Mould Illness