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Show Notes

When you try all the treatments you find out about, and keep receiving different diagnoses, it can be a harrowing experience.

Alexandra shares her difficult decisions in her quest to recover from mould illness and chronic fatigue syndrome and how despite a 'brain-training' program not helping her, she decided to try ANS REWIRE anyway and succeeded with her recovery.

Timestamps

Introduction - I am different0:00:00
Interview Preview0:01:57
Podcast Disclaimer0:03:15
Meeting Alexandra0:03:58
Illness onset with visit to emergency room0:04:53
Meeting Alexandra0:03:58
Alexandra talks about the pressure to take medications for mental health diagnosis0:10:05
Alexandra talks about depression and anxiety about her illness and the lack of validation0:11:46
Alexandra talks about the domino effect of symptoms 0:15:08
The 'woodpecker' attacks her head0:15:48
The terrible impact of one Doctor's words on Alexandra0:17:08
Alexandra finds a new community, treatments and diagnosis of Mould Illness/Mould toxicity0:18:21
The inconsistencies and frustrations around mould illness and mould illness treatments0:20:08
The no win situation with getting mould treatments - the impossible task0:27:58
Alexandra shares the shocking financial impact of trying to treat mould illness0:29:22
Finally a new diagnosis of CFS for Alexandra and a new direction0:31:15
Alexandra talks about her symptoms at their worst - bedbound0:35:04
Alexandra talks about her first failure with trying brain-training0:37:15
Alexandra talks about the impact of unresolving illness on her and her family0:39:24
A new direction and merry-go-round with integrative medicine0:40:46
Alexandra talks about her turning point in mould illness and CFS recovery0:46:10
How ANS REWIRE was a different experience to other brain-training programs0:48:18
Alexandra finds her tribe of fellow recoverers0:50:21
Dan asks about overwhelm in dealing with a multi-lateral approach0:51:05
Engagement with other health care professionals whilst doing ANS REWIRE0:55:32
Dan asks about trepidations with trying 'brain-training' again for CFS & mould illness recovery0:56:57
The importance of mindset and coaching for recovery0:58:08
When did significant recovery shifts occur1:00:56
The experience of the rest of the recovery tribe 1:06:15
Alexandra's recovery journey & people's responses1:08:02
How Alexandra tapered off treatments during her recovery1:11:02
Dan asks about how important the physical training lessons were for her recovery and ANS normalisation1:12:06
What about the fears around physical activity and mould exposure1:14:06
Alexandra focusses on incremental gains for recovery from CFS and mould exposure1:16:34
What Alexandra learned about engaging in life from her illness experience1:19:28
The most Amazing moment since Alexandra recovered from CFS & mould illness1:24:36
What advice Alexandra would give to someone seeking recovery from mould illness and CFS1:26:13

Links

Here is a link to the ANS REWIRE program.  

Transcript

For a full transcript, check out the listing in the recovery stories section here.

Other Resources

Paperback & eBook

CFS Unravelled is the book that started it all, outlining the explanation for the pathogenesis of ME/CFS, Fibromyalgia, POTS, MCS and related syndromes and explaining how recovery is possible.

Learn more HERE.

All my email subscribers receive additional FREE resources like my book Discover Hope.  So consider subscribing and reading the book to rediscover hope.

Discover Hope Bookcover

To learn how other people recover, listen to the recovery interviews!

sunset background with words Fibromyalgia recovery stories
sunset background with words ME/CFS recovery stories
sunset background with words POTS recovery stories
sunset background with words MCS recovery stories

If you would like to learn more about the ANS REWIRE program, check out the 4 free intro lessons or visit the ANS REWIRE website.

Check out some other recent episodes

Episode 4: Dr Jacob Teitelbaum, world leading MECFS Fibromyalgia POTS physician, shares his research and experience
Episode 1: How to cope and deal with the injustice of invisible illness including chronic illness like Fibromyalgia, ME/CFS, POTS and MCS
Episode 6: What we learned from 100s of conversations with people who recovered from MECFS Fibromyalgia & POTS
Episode 2: How ANS REWIRE helps people experiencing Fibromyalgia MECFS POTS MCS

You can see the full list of episodes HERE.

Check out some other recovery stories:

CBT for CFS : Luke shares his experience and frustration that led to his recovery
Recovery From ME/CFS using Mind/Body Approach Gupta Programme
Beth recovers from Fibromyalgia with the help of emotional healing
CFS Recovery: Ted shares how he recovered from CFS after 8 years of illness
CFS Relapse: Katie learns how to end the ME/CFS relapse cycle
Berit Frivold’s Fibromyalgia & MECFS Recovery Story
Abigail tells how she managed to recover from long-term Fibromyalgia MECFS after 20+ years
Kiki overcomes POTS, MECFS with Chronic Lyme after 10 years of illness
After 10 years of illness Oda shares her POTS recovery (& MECFS recovery) using ANS REWIRE & cold water immersion

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