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Show Notes

In this episode we discuss WHY the focus of the book is so key for people to recover from ME/CFS, Fibromyalgia and POTS.

Claudia asks how I came up for the hypothesis for the pathogenesis of the illness (the root cause of the illness), and we discussed why it has touched so many people so deeply.

We also discuss some of the KEY points of the book, how the book unravels so many of the mysteries of this illness in terms of how people get sick and how they recover, as well as the endless list of symptoms.

Timestamps

Introduction0:00:00
Podcast Disclaimer0:03:38
Podcast Beginning0:04:20
Hi To Claudia0:08:21
Dan & Claudia discuss how they met when CFS Unravelled went to paperback0:09:41
What prompted Dan to write CFS Unravelled - his low points0:06:19
Claudia asks about the motivation for writing the book0:09:45
Dan discusses the challenges and process of doing the research0:10:59
Claudia discusses how the foreword touched her & why the change in approach0:12:44
Dan explains why he just gave such a severe answer about symptom treatments0:16:34
Claudia talks about her symptom chasing experience0:17:50
Dan asks Claudia about her experience with reading the book0:18:20
Dan shares the emotional story of his first reader0:19:28
Claudia talks about the emotional impact of reading CFS Unravelled0:21:05
Dan talks about how his investigations led down different tracks & dead ends0:23:56
Claudia shares a great analogy about Dan's process of investigation0:27:18
Dan shares how real life experience of piecing things together was imperfect0:27:54
Dan shares the difficulty in  making sense of so many dysfunctions and his failed attempts to make sense of it all0:29:01
Dan tells how he changed his approach to reach his conclusions0:30:04
Dan shares how the book changed going into paperback0:31:39
Claudia & Dan discuss the challenges of understanding and purpose of book0:32:14
Claudia ask Dan to talk about the ANS role in CFS, Fibromyalgia & POTS0:35:01
Dan talks about the connection between IBS, CFS, ME, Fibromyalgia, POTS, MCS etc0:39:22
Dan talks about secondary dysfunctions and how they are caused0:41:15
Claudia asks about how this illness is triggered0:44:22
Claudia and Dan discuss why the illness perpetuates0:49:54
Claudia  discuss how ANS function normalises0:54:38
Dan discusses the frustration of doctors given dysfunction opposed to non-functional0:55:30
Dan discusses how the ANS explanation explains how people recover differently0:58:46
Claudia asks Dan how people recover from the illness1:01:49
Dan explains the limitations of 'mind-body' approaches for recovery of ME/CFS, Fibromyalgia, POTS & MCS1:06:24
Claudia asks about the next step forward for people seeking recovery1:12:12
Dan discusses his motivation for writing the book how a conversation with a Dr led him to follow through1:13:46

Links

You can learn more about CFS Unravelled HERE

Book CFS Unravelled in paperback or e-book

Other Resources

Paperback & eBook

CFS Unravelled is the book that started it all, outlining the explanation for the pathogenesis of ME/CFS, Fibromyalgia, POTS, MCS and related syndromes and explaining how recovery is possible.

Learn more HERE.

All my email subscribers receive additional FREE resources like my book Discover Hope.  So consider subscribing and reading the book to rediscover hope.

Discover Hope Bookcover

To learn how other people recover, listen to the recovery interviews!

sunset background with words Fibromyalgia recovery stories
sunset background with words ME/CFS recovery stories
sunset background with words POTS recovery stories
sunset background with words MCS recovery stories

If you would like to learn more about the ANS REWIRE program, check out the 4 free intro lessons or visit the ANS REWIRE website.

Check out some other recent episodes

Episode 20: Snippet – How resilient can recoveries be after ME/CFS, Fibromyalgia, POTS, MCS, PVFS (or long-covid)?
Episode 4: Dr Jacob Teitelbaum, world leading MECFS Fibromyalgia POTS physician, shares his research and experience
Episode 27: Snippet – Can’t Cope with Chronic Illness? One Mental Shift Ignited My Resilience
Episode 13: Snippet – Should you change program, coach or practitioner to help you recover from CFS/Fibromyalgia/POTS/MCS?

You can see the full list of episodes HERE.

Comments about this episode

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  1. Dan thank you for writing this book. I bought and read it recently . I was diagnosed with fibromyalgia 4 years ago but have had symptoms for 6 years . Your book has given me hope and has helped me to navigate my recovery. It is work in progress but I have made such improvement. I listen to your podcast as well . Thank you

  2. WARNING: MATERIAL IN THIS POST MAY BE TRIGGERING FOR FOR INDIVIDUALS WHO HAVE EXPERIENCED VIOLENCE OR ABUSE. I’ve loved reading the free portion of your book that you sent me. I’ve had long covid for nearly 5 years and about 7 months ago I discovered your work and Raelan Agle’s. Hence, I adopted a multi pronged approach to my recovery. I soon realised however, that the aetiology of my illness stretched back decades to a rape and murder attempt at a time when I was a successful journalist and soap opera storyliner. I had also started a second undergraduate degree in Astrophysics as a hobby which I combined with body building. For 25years after this tauma I was unable to work as I developed a number of undiagnosed autoimmune diseases and a severe lung disorder.And then covid happened and I was bedbound for 3 years with the usual liteny of symptoms. I was finally hospitalised, went into respiratory failure and had a heart attack and was intubated/ventilated for a month. During this time, on an attempt to get me off the machine I again went in to respiratory failure. Since finding your work and realising that I was suffering from a disregulated autonomic nervous system, I have adopted a regimen of meditation, self hypnosis, strength training exercises and daily reading (both of which I consider brain retraining), daily affirmations, yoga and vagus nerve work plus the adoption of a protein rich diet. Obviously when I started out, like Raelan, I could only exercise for one minute every other day and there was a physical kick back but I adopted a steadfast neutral attitude to all my symptoms. Every facet of my approach began at the level of baby steps and I take a decidedly non perfectionist approach to my recovery. Today, I am not yet free from all my symptoms (insomnia, fatigue and post exertional malaise are still very real problems)but I can now visit friends for short periods of time, occasionally go to a local café and I have even had the odd trip to the theatre. The stimulation of my nervous system is paticularly strong after such events and I often need a few days in an armchair to recover. But that is okay, as all these activities are retraining my autonomic nervous system. Thank you for being the person who “told” me I could get better when every health professional had written me off. And even though I can’t afford to do your course, as I live on state benefits, I’d like to point out it is the most affordable cfs recovery product out there. So again, well done you.

    1. Glad the content has supported you and wonderful to hear about your progress.

      Progress not perfection – keep going!

      Thank you for acknowledging my efforts to keep the prices affordable in this inflation fuelled world!

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