POTS Recovery Stories:
Patient POTS Stories with a difference!

Experience an chronic disease like POTS (Postural Orthostatic Tachycardia Syndrome) can be tough to deal with, so often patients seek POTS stories to see what it is is like for others living with POTS.  Unfortunately there are not enough POTS recovery stories on the internet.

This site shares POTS stories that specifically focus not just on what it is like to live with POTS, but it focusses on how people discovered their POTS recovery strategy or 'cure'.

So every POTS story here, is in fact a POTS recovery story and every story is different.

When I was sick, one of the most upsetting things was not hearing other people recover from POTS, so I believed it wasn't possible. (because we all know there isn't a one fits all cure for POTS!) Hence one of the things I really wanted to do was collect and share POTS Recovery Stories to give hope to people still suffering with this illness.

If you know someone who has recovered from POTS, please ask them to contact me to share their story or if you yourself have recovered from POTS, please contact me directly here.

Besides POTS recovery stories, I also share stories of recovery from Fibromyalgia, PVFS, ME/CFS, MCS and other similar syndromes.  You can see the full list of recovery interviews and recovery stories.

Best wishes,

Dan

RECOVERY STORIES DISCLAIMER:

Please note that the people sharing their stories here have gone through their own journey of recovery from POTS independently from the author of this website and related content. They are simply offer the experience of their POTS recovery story and are not responsible for, nor are they endorsing the content on this website or other related products. Similarly, we do not take responsibility for the content on their respective sites or products and make no implied endorsement.

7 Years of MECFS Fibromyalgia POTS End In Bumpy 2½ Year Journey
Shannon shares her journey of recovery from POTS, Fibromyalgia and ME/CFS after 7 years of illness and shares her fascinating video diaries.
Kristin recovers from 6 years of illness with ME/CFS POTS & MCS as well as PTSD and Bulimia
This is the first recovery story shared on the podcast. Kristin shares her MECFS, POTS and MCS recovery story in this fascinating detailed interview and talks about the treatments she tried, the ups and downs, her relapses and the constant expansion of diagnoses and symptoms. We delve into how she changed her approach to also recover from Bulimia and PTSD and end the cycle of relapse and remission.
After 10 years of illness Oda shares her POTS recovery (& MECFS recovery) using ANS REWIRE & cold water immersion
Oda shares her experience with the ANS REWIRE program after 10 years of illness and shares how she also used cold water therapy.
Kiki overcomes POTS, MECFS with Chronic Lyme after 10 years of illness
Kiki (@chronicallyhealed) tried lots of cures for POTS but nothing really worked for years. Finally, she cured POTS and ME/CFS in stages over a period of 3 years and regained her health despite being diagnosed with Chronic Lyme Disease. In this interview, she tells her story.
Mollie recovers rapidly after 4½ years of MECFS (POTS)
Mollie shares her experience with the ANS REWIRE program after 4 years of failed approaches to return to health in an inspiring interview.
James learns how to heal from Myalgic Encephalomyelitis after 9 years of illness
After 8 years of suffering, James' life had hit hit rock-bottom. “I couldn’t see a future for myself”. It was an understandable outlook for a young man whose life was in shambles and who had never experienced what it was like to be an adult and have normal health. But against all odds, he then changed his approach, his outlook, his whole life and 9 months later he was recovered.
My Story – Dan Neuffer’s ME/CFS Fibromyalgia POTS Recovery Story
For Recovery Story Disclaimer, please see the main page here!Further to the written story, I have also shared my story[...]

Here are some social media images for sharing:

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Kerryanne

Living with pots an fatigue has just destroyed my life, ran out of money trying to get better everything from expensive vitamin protocols, acupressure, acupuncture, chiropractor visits, private blood tests, reiki, private functional doctor, Chinese’s herbalist, deep tissue massages, the list goes on 🙁 feeling like I will never make it through this, but yet a teeny slither of hope inside pushing me on. This is a rollercoaster ride I didn’t ask to get on and just want to get off 🙁 I found you by accident, on YouTube, I was looking for a binaural best 3am in the morning… Read more »

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