ME/CFS, POTS, MCS and Fibromyalgia Advocacy Resources

MECFS, POTS & Fibromyalgia Advocacy and Memes

Life with chronic illness is difficult enough without people being insensitive or simply showing no understanding or acceptance, especially if you are experiencing ME/CFS, POTS, Fibromyalgia or a similar condition.

So advocacy for people to showcase the plight, the difficulties and educate others that the illness is absolutely real and not imagined.

Advocacy Posters

To get involved in MECFS, POTS & Fibromyalgia Advocacy, you can share daily posters and memes on social media if you follow me here:

Advocacy Blogs and Videos

One of the biggest issues around MECFS, POTS & Fibromyalgia Advocacy is that the illness is often called the 'invisible illness' because the symptoms aren't always apparent.

So here are some of my blogs that are particularly relevant to symptoms and patient advocacy that I hope you enjoy.

Advocacy Video – let’s spread the word together!
People often think that ME/CFS is just about fatigue. This video is to help educate the wider community and make[...]
After 6 years it’s time I make a change
Reflecting on my efforts over the years My recent health scare has made me reflect about what happens when one[...]
3 Problems Chronically Ill people can avoid by STOPPING this
3 Problems Chronically Ill people can avoid by STOPPING this So what are your thoughts about the questions I pose[...]
How MECFS & Fibromyalgia Really Affects You – Even Those Experiencing It Don’t Know!
Please note that the orginal version of this article was originally published on Health Rising with the title "Nobody Knows[...]
2 Explosive Realisations About the Suffering with MECFS and Fibromyalgia
2 Explosive Realisations About the Suffering with MECFS and Fibromyalgia The pain was suddenly so severe, that I screamed, “Call[...]

Patient Stories

Perhaps few things resonate as much as people as hearing someone else's story with the illness.  All the recovery stories and interviews have people explain their symptoms and how difficult it is to live with the illness, as well as the hurt they experience with others who don't believe them.

sunset background with words POTS recovery stories
sunset background with words PVFS recovery stories
sunset background with words MCS recovery stories