If you have ME/CFS, Fibromyalgia, POTS or other invisible illness, then chances are you find it frustrating trying to get other people to believe and take your choices seriously, especially family and friends. Here is my advice on how to handle this.
For years I have been giving people advice and find myself getting annoyed after all these years when I hear the suffering and frustration that people endure because their choices are not respected.
Diane recovered remarkably fast after 3 decades of ME/CFS/Fibromyalgia and one year after her recovery shares what life is like now. She tells her story and her experience giving a review of the ANS REWIRE program.
Getting newly diagnosed with ME/CFS, Fibromyalgia, POTS or similar syndrome can bring up all kinds of emotions. But the decisions we make when we are diagnosed can have both an immediate and ongoing impact on our lives, our health and our chances of recovery. In this video, I talk about my own experience and seeing others experience with this syndrome and how their decisions have impacted their lives. What are your thoughts about the questions I pose in the video? Let’s have a discussion and please share this with others experiencing ME/CFS, Fibromyalgia, POTS or related syndrome. I look forward to your thoughts.
Stuart discusses his experience with Myalgic Encephalomyelitis (M.E. ME/CFS) and how three ‘recoveries’ using pacing were just symptom reductions but failed as soon as he exerted himself normally. Then, after 10 years of illness, he recovered in as little as 2 months.
Peter shares how he recovered from a decade of CFS, Fibromyalgia, and Multiple Chemical Sensitivities in a period of 12 months of using the ANS REWIRE program.
Please note that this article was originally published on Health Rising with the title “A Positive Prognosis For CFS/Fibromyalgia/POTS (Could It Help?)”. If you are like most people who have experienced ME/CFS, Fibromyalgia, POTS or a similar syndrome, there is a real sense of relief when you finally receive a diagnosis. At least you […]
Brenten’s story is a wonderful example of how it is possible to recover from long-term ME/CFS. We were lucky enough to capture parts of his journey on film and when Brenten watches the footage from a few years earlier we both get emotional.