People often think that ME/CFS is just about fatigue. This video is to help educate the wider community and make them realise that the illness is much more involved than that, and to show them it’s real! We also created a longer version of the video, which is designed to help people experiencing ME/CFS realise that […]
Exploring how you make decisions for your CFS/Fibro/POTS recovery may be the most important first step of your recovery to health journey.
When people ask ‘What are the symptoms of Chronic Fatigue Syndrome (ME/CFS)’, they are often surprised to learn that there is an extensive ME/CFS Symptoms list. IMPORTANT NOTE: This list is not to be used for the purpose of self-diagnosis as many of these symptoms may be produced by other serious illnesses. Hence you […]
Kari’s ME/CFS had a rapid shocking onset whilst playing sport, but despite her best efforts, she stayed sick for 6 years. Now a decade later she looks back and wonders – did her CFS go away by itself?
My recent health scare has made me reflect about what happens when one day, I will no longer be here. Accordingly, I have reflected on my advocacy efforts for ME/CFS/Fibromyalgia/POTS and come to a big decision that change is warranted after 6 years of effort.
Ted shares how an email reignited hope and reduced him and his wife to tears. In this interview he tells how he recovered using the ANS REWIRE program.
If you are asking “What is Chronic Fatigue Syndrome (CFS)?”, then your very next question is probably “What is ME/CFS?” and “What is Myalgic Encephalomyelitis (ME)?”. Why the different names?All these different names for the same illness show the history of confusion and lack of definitive diagnostic tools.Whilst a distinction in definition can be made […]
FLASHBACK:It was Sunday morning at around 3.30 am. As I drifted back into consciousness, I realised I was lying on a concrete floor. I was outside, on a footpath, curled up in the fetal position. I was alone.There was a plastic sick bag in my hand and suddenly the waves of pain washed over me […]
Teodora had experienced severe chronic fatigue before her Fibromyalgia started at age 31. She didn’t want to accept her doctors’ verdicts that it’s ‘incurable’, so she found her own path out of fibromyalgia.
If you have ME/CFS, Fibromyalgia, POTS or other invisible illness, then chances are you find it frustrating trying to get other people to believe and take your choices seriously, especially family and friends. Here is my advice on how to handle this.
For years I have been giving people advice and find myself getting annoyed after all these years when I hear the suffering and frustration that people endure because their choices are not respected.