Show Notes

In this video Dan shares the one mental shift that ignited more resilience after years of suffering and frustration. If you’re searching for practical ways to cope, rebuild psychological strength and improve daily life with chronic illness, this could be key for you.

Timestamps

00:00 Introduction: Battling Chronic Illness

00:29 A Pivotal Strategy for Resilience

02:14 Understanding the Lack of Resilience

04:56 The Power of Acceptance

05:40 Shifting Focus to Practical Steps

06:31 Embracing a Stoic Perspective

09:46 The Healthier Attitude: Acceptance

11:35 Conclusion: Transforming Suffering

Links

Here is a link to the ANS REWIRE program.  

Transcript

Have you ever felt completely spent grappling with your chronic illness? Wondering if there's anything left in you to fight or cope? I'm Dan Neuffer for author of CFS Unravelled and the creator of the ANS REWIRE Recovery Program. And like many of you, I've battled ME CFS fibromyalgia POTS for years before I eventually recovered.

Today I am sharing a single pivotal strategy that transformed my own resilience when I felt there was nothing left. It's a perspective that took years to fully embrace. So let me start to say that many of you do better than I ever did to cope with chronic illness. I'm always inspired by you when I get the chance to speak with you.

I personally found that my own resilience really waned, and I know I'm not alone with that. That's why in both the recovery interviews as well as in private discussions, I always explore with other people how they were able to cope with this adversity. How did they manage to be resilient? Many years ago, I spoke with a fellow Recoverer who had suffered with, over a decade with ME/CFS and other severe chronic health problems. And he really suffered extraordinarily, severely looking for that magic answer to coping and resilience. I asked him, how could you get through this mentally? How could you cope? And he said, are you ready for the big reveal? What choice did I have?

I was like, what? Okay, that was a bit of a failure. You know, I really hoped to get some insight, well, a decade later and another five years of severe personal suffering, and I finally understand this answer and I'm gonna help you understand it now as well. Let's start with this. Ask yourself, why do we lack resilience?

Now, what, what is that? How does it feel? Take a moment now to just try and connect with that feeling. It's a bit like overwhelm, isn't it? Like you just can't do it anymore. It's, it's too much. But you notice that there's also a feeling around things just not being right, not being fair. And when we have things going against us, we see that things are not how they should be.

We often feel dismayed by this. You know, why, why did this happen to me? I need to make things right again. You know, in our society over the last 80 years or so, we've called it this idea that things should be right. Our lives should be good, our lives should be safe. We should be treated fairly and equally with respect and dignity.

We should have freedom and autonomy, these kind of things. It sounds good, but is it a reasonable expectation? I would say no, not in the context of a longer term, more global kind of a picture. I am not saying we shouldn't aspire to be better people or better and kinder society or to have these things in place, but if I ask some people in a third world country, so if I ask your great, great-grandpa or great-great-grandma, let's say, should you expect to be safe, expect to be treated fairly and expect to have your basic needs met, I reckon they might have rolled their eyes at me.

In fact, some might suggest that such things are ridiculous. You know, like; What? Where have you been living, fairy land? Think about it, wars, famine, oppression, disease. This was normal. This was everyday life. People rob you, maim you, take advantage of you. Normal! People are crippled, diseased, disabled. Normal! People are being taken advantage of, oppressed, displaced. Normal! Of course, nobody liked this. Nobody wants things to be like that, but none of it seemed like a shock to people. Now, people fought against this just like we should, but the difference was that they never felt entitled to have things be all good for them. So there was a level of acceptance, and with that acceptance comes a tremendous reduction in stress. What were those words? What choice did I have? Acceptance. Can you see it? But there's more to it. You see, when you accept that this is simply part of life, then rather than feeling you have to right the impossible wrong, rather than losing all your energy on that and feeling like a victim of unfairness, you simply say; bummer. Now what? What do I do now? What do you do? So you focus shifts to the practical steps of getting on with things. Now you might say, Hey, I take practical steps. I'm trying to make the best things I'm, I'm trying to get on with my life. Of course, we all try and do that, but I'm not sure if you can recognize that there's a different energy to what I'm talking about.

I know that when I was sick, I didn't feel resilient. I felt bitter, angry. I felt it was unfair. I felt I was treated unfairly, and I felt I had to fix it. Well, this didn't just give me stress, but it drained me not just physically, but mentally and emotionally now as I deal with a completely different health matter resulting from surgery for years ago.

You know, I still struggle some days, but more and more I try to tap into this more stoic perspective. Yep. This happens to many people. Some days are better, some days are worse. What can I do with the bad days? What can I do to make things just a bit better? It will be as it will be. It's a different energy.

Don't get me wrong, I still have my moments, usually around 3:00 AM when I'm clutching my guts, I often feel a whole lot less stoic and cool about things. Trust me, I'm, I'm far from perfect. This is still, you know, a learning experience for me too, but I'm talking about being resilient in the face of adversity by accepting that this is how it is, and we must simply make the best of life.

And focusing on what we can do to improve things. It's letting go of this idea that things can't be good until it's fixed. It's the opposite. It's saying, this is normal. This is what happens to people. How can things be good anyway? It's letting go of this dialogue about, I need this, I want that. It should be like this.

It's just acceptance. This is how it is. What can I do now, right now to make things a bit better? I will live a good life anyway. As I say this, I can almost hear my old self screaming at me. Good life. Easy for you to say. I can't do anything. I can't enjoy anything. I get it now. Even this time around with a different chronic illness.

I have had a similar experience at times. Now outside of supporting people in my program, I have done little on my YouTube channel during the last five years. I've recorded many interviews, podcasts, they never got published. It's always been a sort of a start and stop at best. I haven't written any more books.

I haven't created additional programs for people I could help. I've been very motivated, but then I haven't managed to do it. And I've missed out on many personal things. I've missed out on holidays. I haven't been able to do many of the activities that compress my abdomen now, so I don't spend time with my family sometimes like I want to, but what choice did I have?

But I have been able to do some things, other things. What choice did I have? , he said. You see, it's not an intellectual thing. It's a feeling thing, an attitude if you like. It's about surrendering to the reality of the situation. Instead of trying to force the world to be like, we want, like our own fantasy land of how things should be.

This is how it is. No thought, no dialogue, just acceptance. This is how it is now. What do I do? Can you see how much healthier it is? How much more resilient an attitude. This creates your whole focus and energy going to making the best of the situation rather than trying to force the bad situation to become good with both attitudes.

You still try to improve your health, your life. You still try to recover, but these things feel different. When we don't accept, we say life is a disaster. I can't cope. What's the point? I'm angry. I hate this. It's not fair. I have to fix it. Stress, stress, distress. Now, every week I speak with people who are so stuck in trying to right the wrongs, the injustices of people not believing what's going on with them, um, of people not helping them.

They're so stuck in trying to get justice. There's no energy left to actually do something constructive to move them forward and recover their health to get their lives back. When we accept, when we recognize that bad things are happening, our part of life, they're normal, we can say, bummer. Okay, how can I enjoy today as best as possible Anyway, what can I do that's fun?

What can I do that's productive? What can I do that helps me feel better if I can't do anything else? What's new? Yeah, what new things can I try? Different feeling, different energy. The first one, we see nothing except what is wrong in our lives and the world, and we are stuck. The second we see the positives.

We tap into optimism, into gratitude. We engage in some kind of action. You know, as we conclude today's discussion, I encourage you to embrace this. Remember, resilience isn't just about bouncing back from adversity. It's about coping with it, persevering through it. It's not just about the outwardly results of what you do or how you perform.

It's about how it feels to you inside. So it's not about being tough. In fact, being tough is often the problem because when we are tough, we actually endure suffering. We don't want to endure suffering. We want to transform it. We want to transcend it, move out of suffering. I hope this will talk here from my desk, supports you in some way today.

Now, I'd, I'd love to hear from you, how has your journey with chronic illness led you to resilience? Please share your insights in the comments below, and yeah, let's go stronger together. Remember, in the face of adversity, every choice is a chance to choose a better path. I hope this has made today a little bit better today.

Till next time.

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Other Resources

Paperback & eBook

CFS Unravelled is the book that started it all, outlining the explanation for the pathogenesis of ME/CFS, Fibromyalgia, POTS, MCS and related syndromes and explaining how recovery is possible.

Learn more HERE.

All my email subscribers receive additional FREE resources like my book Discover Hope.  So consider subscribing and reading the book to rediscover hope.

Discover Hope Bookcover

To learn how other people recover, listen to the recovery interviews!

sunset background with words Fibromyalgia recovery stories
sunset background with words ME/CFS recovery stories
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If you would like to learn more about the ANS REWIRE program, check out the 4 free intro lessons or visit the ANS REWIRE website.

Check out some other recent episodes

Episode 20: Snippet – How resilient can recoveries be after ME/CFS, Fibromyalgia, POTS, MCS, PVFS (or long-covid)?
Episode 4: Dr Jacob Teitelbaum, world leading MECFS Fibromyalgia POTS physician, shares his research and experience
Episode 13: Snippet – Should you change program, coach or practitioner to help you recover from CFS/Fibromyalgia/POTS/MCS?
Episode 1: How to cope and deal with the injustice of invisible illness including chronic illness like Fibromyalgia, ME/CFS, POTS and MCS

You can see the full list of episodes HERE.

Check out some other recovery stories:

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Liz Dyde’s Mind-Body Connection in Fibromyalgia
Looking for Help for Fibromyalgia – Sue Ingebretson’s Fibromyalgia Recovery
Colin’s recovery from long-term ME/CFS & MCS using the ANS REWIRE program
Beth French’s Journey from ME-CFS to Ultra Marathon Swimmer
“There is no Cure for Fibromyaliga” – An Inspiring Interview about Recovery from MCS, CFS & FMS
Stuart Aken ends 10 years of ME/CFS & discusses his success with pacing and its failures
The Lightning Process – Simon’s Last Ditch Effort for Recovery from M.E.

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