Show Notes
It's one thing seeing interviews with people that recovered, and another thing seeing them tell their stories in real-time. In this interview, Shannon tells how she recovered from fibromyalgia, ME/CFS and POTS after 7 years of illness. Her 2½ year journey was bumpy, with her actually worsening before she got better. This interview captures her journey, and when you check out the show notes you will see a collection of her video journals below that captured her story which makes for a fascinating watch.
Timestamps
Introduction - What If recovery isn't going well | 0:00:00 |
Podcast Disclaimer | 0:01:51 |
Meeting Shannon | 0:02:33 |
Shannon's experience with getting diagnosed and prognosis for Fibromyalgia | 0:03:37 |
Medical emergency that led to onset of fibromyalgia | 0:05:57 |
We explore the year leading to the onset of the illness | 0:09:03 |
Shannon talks about her experience with depression pre illness | 0:10:52 |
Shannon discusses her early emotional experience with Fibromyalgia | 0:13:15 |
Shannon talks about being bedbound and the idea of 'pushing' through to recovery | 0:16:09 |
Shannon tells of positive strategies that helped but didn't lead to recovery | 0:17:25 |
Shannon's symptoms and experience of Fibromyalgia & when she thought she may not survive | 0:19:02 |
How Shannon's family and friends reacted to her illness | 0:22:58 |
Illness frustration and onset of POTS and illness worsening & connection to PTSD | 0:24:03 |
How ANS REWIRE supported her when he condition suddenly worsened | 0:29:41 |
Dan talks about dark times in Fibromyalgia, CFS and POTS | 0:31:37 |
Shannon talks about how she used brain-training strategies for anxiety | 0:32:59 |
Shannon talks about how her CFS Fibro POTS recovery evolved with ANS REWIRE | 0:35:27 |
We talk about belief in whether we can recover and the video diary that Shannon shares | 0:37:37 |
Dan and Shannon talk about the lessons of ANS REWIRE on how Shannon applied them | 0:40:17 |
Shannon talks about what allowed her to persist to recover | 0:45:05 |
We discuss the experience of brain fog and how Shannon re-engaged mentally as she recovered | 0:47:14 |
What Shannon thinks is the most important thing for CFS/POTS/Fibromyalgia Recovery | 0:50:11 |
Dan talks about the importance of tailoring our approach for recovery | 0:50:55 |
Shannon's life after recovering from Fibromyalgia CFS & POTS | 0:52:17 |
Shannon's Video Journals
Video 1: Jan 2018 - Hopeful
Video 2: Feb 2018 - "Believe It"
Video 3: Apr 2018 - "Terrified" but "Positive"?
Video 4: Nov 2018 - "Grateful" & "Hopeful"
Video 5: Jan 2019 - "Recovering Quicker"
Video 5b: Feb 2019 - History of Journey So Far (longer video)
Video 6: March 2019 - "Excited" & "Changing"
Video 7: July 2019 - "Life is filled with other things" & "Unheard of"
Video 8: May 2020 - "95-98% healed" & "breakthrough to next level"
Video 9: Aug 22 Update - "100% recovered" & "like a normal person"
Links
Here is a link to the ANS REWIRE program.
Transcript
For a full transcript, check out the listing in the recovery stories section here.
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Other Resources
CFS Unravelled is the book that started it all, outlining the explanation for the pathogenesis of ME/CFS, Fibromyalgia, POTS, MCS and related syndromes and explaining how recovery is possible.
All my email subscribers receive additional FREE resources like my book Discover Hope. So consider subscribing and reading the book to rediscover hope.
To learn how other people recover, listen to the recovery interviews!
If you would like to learn more about the ANS REWIRE program, check out the 4 free intro lessons or visit the ANS REWIRE website.
Check out some other recent episodes
You can see the full list of episodes HERE.
Thank you so very much Shannon! I too have been doing the ANSrewire program and it has been an interesting journey. Unfortunately, I developed severe POTS after an emotional shock. POTS has now become my number one symptom. Yesterday, I felt very depressed about this happening to me when I had been working the program for about a year. You have given me a lot of hope today. With the help of some mineral rebalancing and faith in the ANSrewire program I will succeed.