ME/CFS Recovery Stories:
Patient ME/CFS Stories with a difference!
Suffering an 'incurable' disease like ME/CFS (Chronic Fatigue Syndrome) can be very difficult, so often people seek ME/CFS stories to learn what it is is like for others to be living with ME/CFS, but sadly, there are not enough ME/CFS recovery stories being shared on the internet.
This page shares ME/CFS stories with a difference. These stories don't just focus on what it is like to live with ME/CFS, how people endure the lack of understanding from family, friends and even health professionals, but it focusses on how people found their ME/CFS recovery strategy or 'cure' to recover their health.
So every ME/CFS story here, is in fact a ME/CFS recovery story and every story is different.
When I was sick, one of the most upsetting things was not hearing other people recover from ME/CFS, so I believed it wasn't possible. (because we all know there isn't a one fits all cure for ME/CFS!) Hence one of the things I really wanted to do was collect and share ME/CFS Recovery Stories to give hope to people still suffering with this illness.
If you know someone who has recovered from ME/CFS, please ask them to contact me to share their story or if you yourself have recovered from ME/CFS, please contact me directly here.
Besides ME/CFS recovery stories, I also share stories of recovery from Fibromyalgia, PVFS, POTS, MCS and other similar syndromes. You can see the full list of recovery interviews and recovery stories.
Best wishes,
Dan
RECOVERY STORIES DISCLAIMER:
Please note that the people sharing their stories here have gone through their own journey of recovery from ME/CFS independently from the author of this website and related content. They are simply offer the experience of their ME/CFS recovery story and are not responsible for, nor are they endorsing the content on this website or other related products. Similarly, we do not take responsibility for the content on their respective sites or products and make no implied endorsement.
ME/CFS Recovery Story: How Pacing and CBT Led to Lynne’s Success
Join us in this transformative episode as Lynne, an experienced nurse, bravely shares her journey to recovery from ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome).
7 Years of MECFS Fibromyalgia POTS End In Bumpy 2½ Year Journey
Shannon shares her journey of recovery from POTS, Fibromyalgia and ME/CFS after 7 years of illness and shares her fascinating video diaries.
RECOVERY STORY: Alexandra recovers from 4 years of illness with CFS and Mould Illness
Mould illness is often regarded as needing complex physical treatments alone - when it fails, you're told to do more. Alexandra shares how a shift in her recovery approach using neuroplasticity led to her mould illness and chronic fatigue syndrome recovery.
Kristin recovers from 6 years of illness with ME/CFS POTS & MCS as well as PTSD and Bulimia
This is the first recovery story shared on the podcast. Kristin shares her MECFS, POTS and MCS recovery story in this fascinating detailed interview and talks about the treatments she tried, the ups and downs, her relapses and the constant expansion of diagnoses and symptoms. We delve into how she changed her approach to also recover from Bulimia and PTSD and end the cycle of relapse and remission.
After 10 years of illness Oda shares her POTS recovery (& MECFS recovery) using ANS REWIRE & cold water immersion
Oda shares her experience with the ANS REWIRE program after 10 years of illness and shares how she also used cold water therapy.
Severe Chronic Fatigue Syndrome Recovery After Six Years – Vera’s Story
Vera tells how she recovered from severe Chronic Fatigue Syndrome after 6 years using her own approach.
Colin’s recovery from long-term ME/CFS & MCS using the ANS REWIRE program
Colin tells his story of recovery from long-term ME/CFS & MCS using ANS REWIRE.
CBT for CFS : Luke shares his experience and frustration that led to his recovery
Luke shares his frustration of being told CFS is in his mind, and how he explored CBT for CFS and how he recovered
3 Decades of MECFS, Fibromyalgia, MCS and Chronic Lyme end ‘Shockingly Fast’
During 3 decades of illness with ME/CFS, Fibromyalgia, MCS and Chronic Lyme, Claudia becomes intimately involved with advocacy work when she gets a strange facebook request about a book talking of 'recovery' - what happened next left her feeling shocked and a little confused.
Kiki overcomes POTS, MECFS with Chronic Lyme after 10 years of illness
Kiki (@chronicallyhealed) tried lots of cures for POTS but nothing really worked for years. Finally, she cured POTS and ME/CFS in stages over a period of 3 years and regained her health despite being diagnosed with Chronic Lyme Disease. In this interview, she tells her story.
Sirin Gnadeberg shares how she cured her ME/CFS & POTS
Sirin Gnadeberg shares how she cured ME/CFS & POTS after 5 years of debilitating illness in her own words below.
Mollie recovers rapidly after 4½ years of MECFS (POTS)
Mollie shares her experience with the ANS REWIRE program after 4 years of failed approaches to return to health in an inspiring interview.
Chronic Fatigue Syndrome cured by itself? Here is Kari’s CFS Recovery Story
Kari's ME/CFS had a rapid shocking onset whilst playing sport, but despite her best efforts, she stayed sick for 6 years. Now a decade later she looks back and wonders - did her CFS go away by itself?
Teodora finds her own path out of fibromyalgia MECFS
Teodora had experienced severe chronic fatigue before her Fibromyalgia started at age 31. She didn't want to accept her doctors' verdicts that it's 'incurable', so she found her own path out of fibromyalgia.
Age & length of illness are no barrier for recovery from fibromyalgia and CFS
Diane recovered remarkably fast after 3 decades of ME/CFS/Fibromyalgia and one year after her recovery shares what life is like now. She tells her story and her experience giving a review of the ANS REWIRE program.
Stuart Aken ends 10 years of ME/CFS & discusses his success with pacing and its failures
Stuart discusses his experience with Myalgic Encephalomyelitis (M.E. ME/CFS) and how three 'recoveries' using pacing were just symptom reductions but failed as soon as he exerted himself normally. Then, after 10 years of illness, he recovered in as little as 2 months.
From bedridden with Fibromyalgia & CFS & MCS to fully well
Peter shares how he recovered from a decade of CFS, Fibromyalgia, and Multiple Chemical Sensitivities in a period of 12 months of using the ANS REWIRE program.
Long-term ME CFS sufferer transforms before your eyes
Brenten's story is a wonderful example of how it is possible to recover from long-term ME/CFS. We were lucky enough to capture parts of his journey on film and when Brenten watches the footage from a few years earlier we both get emotional.
CFS Recovery: Ted shares how he recovered from CFS after 8 years of illness
Ted shares how an email reignited hope and reduced him and his wife to tears. In this interview he tells how he recovered from CFS using the ANS REWIRE program.
James learns how to heal from Myalgic Encephalomyelitis after 9 years of illness
After 8 years of suffering, James' life had hit hit rock-bottom. “I couldn’t see a future for myself”. It was an understandable outlook for a young man whose life was in shambles and who had never experienced what it was like to be an adult and have normal health. But against all odds, he then changed his approach, his outlook, his whole life and 9 months later he was recovered.
Tim shares his long-term recovery from Myalgic Encephalomyelitis
Tim shares his journey and struggles with M.E. and explains what he has learned from mentoring others to recover. He also shares the positive learnings from his experience that he has taken into his new life post Myalgic Encephalomyelitis.
Rapid onset CFS/Fibromyalgia sufferer makes full recovery and shares her shocking journey
Many people become bedbound with MECFS or Fibromyalgia, if we have the illness long enough. But imagine the shock of becoming bedbound OVERNIGHT! Sayaha's recovery includes all the classic strategies we so often speak about, although as is so often the case, Sayaha mostly worked these out herself. She is passionate about sharing her insights so listen for important recovery distinctions.
Rachel’s finally experiences a robust Fibromyalgia recovery
Rachel’s Fibromyalgia started at age 18 and it was only a visit down to Australia that allowed her to recover without any defined strategy or plan. But it was short lived and she got ill again. But after 15 years of illness, she finally found a way to create a robust recovery that she has enjoyed for over 6 years now, allowing her to exercise virtually every day and work full-time again!
20 years of Fibromyalgia, CFS & PTSD, Depression and Anxiety come to an end
Leah tells her story of recovery and how a moment watching daytime TV changed everything and led her down a new path. After 20 years of severe illness, she got her life back in as little as 10 months.
Beth French’s Journey from ME-CFS to Ultra Marathon Swimmer
Beth French’s’ Myalgic Encephalomyelitis (Chronic Fatigue Syndrome) started at age 10 but was only diagnosed at 17 when she became bed-ridden. 4 years later she had recovered against all odds and took her recovery to the next level with her amazing athletic achievements.
Is chronic lyme disease curable? – Katina Makris tells of her Chronic Lyme & Fibromyalgia Healing Journey
Is Chronic Lyme Disease curable? Katina Makris tells of her Chronic Lyme & Fibromyalgia Healing Journey For Recovery Story Disclaimer,[...]
The Lightning Process – Simon’s Last Ditch Effort for Recovery from M.E.
Simon spent over 8 years trying to get well after being diagnosed with Myalgic Encephalomyelitis (also known as Chronic Fatigue Syndrome). After being sick for so long, he couldn’t even envisage feeling well again but then decided to try something he felt quite sceptical about.
A mother finds a way to help her child with Chronic Fatigue Syndrome
A mother finds a way to help her child with Chronic Fatigue Syndrome For Recovery Story Disclaimer, please see the[...]
Recovery From ME/CFS using Mind/Body Approach Gupta Programme
Recovery From ME/CFS using Mind/Body Approach Gupta Programme For Recovery Story Disclaimer, please see the main page here! Jenny didn’t[...]
Jane learned how to overcome Depression and MECFS
For Recovery Story Disclaimer, please see the main page here! If you have ever been faced with the label of[...]
“There is no Cure for Fibromyaliga” – An Inspiring Interview about Recovery from MCS, CFS & FMS
"There is no Cure for Fibromyaliga" - An Inspiring Interview about Recovery from MCS, CFS & FMS For Recovery Story[...]
CFS Relapse: Katie learns how to end the ME/CFS relapse cycle
CFS Relapse: Katie learns how to end the ME/CFS relapse cycleFor Recovery Story Disclaimer, please see the main page here!When[...]
Lynn shares her thoughts on how to overcome fibromyalgia and get your life back
Lynn shares her thoughts on how to overcome Fibromyalgia and get your life backFor Recovery Story Disclaimer, please see the[...]
Abigail tells how she managed to recover from long-term Fibromyalgia MECFS after 20+ years
Abigail tells how she managed to reverse long-term Fibromyalgia and ME/CFS after 20+ years For Recovery Story Disclaimer, please see[...]
Berit Frivold’s Fibromyalgia & MECFS Recovery Story
Berit Frivold’s Fibromyalgia & ME/CFS Recovery Story For Recovery Story Disclaimer, please see the main page here! How Berit’s Chronic[...]
Pat Gurnick Learned How To Get Well From CFS, Fibromyalgia and MCS
Pat Gurnick Learned How To Get Well From CFS, Fibromyalgia and MCS For Recovery Story Disclaimer, please see the main[...]
My Story – Dan Neuffer’s ME/CFS Fibromyalgia POTS Recovery Story
For Recovery Story Disclaimer, please see the main page here!Further to the written story, I have also shared my story[...]
Here are some images for sharing on social media:
Hi Dan, firstly thank you for sharing the hope of recovery from this extraordinary illness. I have been really unwell with what my GP agrees is CFS/ME, though it began with flu like symptoms and an ebv diagnosis 20 months ago and my ebv test continue to show a positive reading. I am essentially house bound and often bed and couch bound with fatigue and dizziness and flu like symptoms and significant gut problems that have resulted in persistent vomiting over the past 4 to 6 months. All gastro tests have been done, along with everything else, and the results… Read more »